Most
Requested
Content
04.28.23
We ask for your help
disseminating the Roadmap through your social
media channels, newsletters, and websites.
A new report from the World Institute of Disability, written by June Isaacson Kailes Disability Policy Consultant, Health Plan Member-Focused Emergency Practices Roadmap, investigates and documents promising member-centered emergency interventions. These critical procedures include applying lessons from COVID-19 and other co-occurring and previous emergencies.
screen readers version: https://wid.org/wp-content/uploads/2022/08/WID_Report_Roadmap_accessible-1.pdf
The Roadmap’s purpose
is to strengthen, create,
promote, and embed emergency practices into
member-centered health plans’ processes which help members successfully
deal
with, live through, and survive emergencies. Health plans are often overlooked as
essential partners before, during, and after emergencies. Yet, more
than any
other service system, health plans, public and private, serve most
people with disabilities
in the United States.
Health plans play critical emergency
roles in addressing and protecting their members’ resilience,
health, safety, and independence. In emergencies, health plans can
prevent or
mitigate the cascading of adverse emergency effects of typically
well-controlled chronic health conditions. Like a house of cards, the
balance can easily be disrupted or collapse. Targeted prevention
includes
protection from degrading failure of:
Major focus of this Roadmap is:
American
Public Health Association Annual Meeting 10/25/21 Slide
Deck
Quality
Services for People with Disabilities and Activity Limitations – Health
Care Video
Series, 2012, see Health
below
Disability
Competencies
Emergencies / Disasters
Health
Accessible Meetings, Events, and Conferences
July
2015, Digital updated version of June Isaacson Kailes and Darrel Jones'
1993
work, A Guide to Planning Accessible Meetings. The Mid-Atlantic ADA
Center and
TransCen Inc.
Effectively Including People with Disabilities in
Policy and
Advisory Groups (Edition 2, 2012)
Southern California Wildfires After Action Report (2008) Text
Commnity
Engagement
Emergency
Services
Checklist for Integrating People with Disabilities and Others with Access and Functional Needs into Emergency Planning, Response & Recovery (2020 - updated, 2014)
Defining
Functional Needs - Updating CMIST (2017) -
resulting from the evolving of terms as well as the clarity, precision,
and
specificity of our thinking and practice. CMIST is a memory tool to
help people
remember and plan for the five functional needs individuals may
have in
an
emergency or disaster: communication; maintaining health; independence;
support, safety and self-determination; and transportation.
Emergency Registries are pointed to as an easy and logical answer for addressing what are perceived as “special needs” for a small segment of the population. In reality, registry issues are complex, and the needs of people when functionally defined, are not special, and are not limited to just a small group of people.
These
registry
resource pages provide a deeper exploration of registries and include:
Guidance
for
Integrating People with Disabilities in Emergency Drills and Exercises,
Edition
2, 2020 NEW easier to use format with updated
content [see Edition 2015
below] including:
Inclusive
Event
Procedures for Emergencies,
Edition I, October 2017 - Procedures
for emergencies should be
incorporated into event planning. Emergency procedures should
anticipate the
needs of everyone. Planning should recognize that there will be
attendees with
disabilities who may need evacuation or other assistance in an
emergency. These
attendees have a variety of disabilities (mobility, breathing,
allergies,
hearing, seeing, reading, understanding or chronic conditions) and may
have
difficulty or be unable to: use
stairwells,
hear alarms, see or read exit signs and understand instructions.
Contents include:
applying emergency planning strategies, safety considerations for site
selection, projecting numbers of attendees with disabilities, a
checklist
for
inclusive emergency safety briefings for attendees, emergency
planning with event facilities staff and more resources. Readers
should use
this guidance in conjunction with information
found in “Accessible
Meetings, Events, and Conferences Guide.” http://www.adahospitality.org/accessible-meetings-events-conferences-guide/book
Moving
Beyond "Special Needs" A function-based framework for emergency
management and planning, (2007)
The
National Shelter System and Physical Accessibility - Time to Look Under
the
Hood (2017) focuses on physical
accessibility, one of the
many mass care criteria used by the American Red Cross’s National
Shelter System
(NSS). This focus on facility access is motivated by being repeatedly
told, (in
my role as a trainer, consultant and policy analyst,) by emergency
management
professionals that they do not need to survey their mass care sites for
physical accessibility, because they can depend on the information in
the NSS.
The
information in this article is derived from informal discussions with
American
Red Cross staff and volunteers. These discussions resulted in
inconsistent and
sometimes contradictory information regarding NSS. What follows is a
list of
questions and concerns regarding NSS’s information accuracy, surveyor
competencies, and uniformity in applying standardized policies and
procedures
across divisions and regions. For example, different survey versions of
physical
access questions appear to be used in NSS and in different regions.
Training:
Maximizing Your ROI!
(2017) In
the emergency management world,
applying lessons can make the difference between life and death for
people with
disabilities and others with access and functional needs. It’s about
impact and
outcomes. The goal is not just lessons observed, documented, or heard
about,
but lessons repeatedly applied, so we can eventually claim them as
lessons
learned.
Recent
disaster response has highlighted and reinforced that our current
training models need modernizing. Time and budgets for
training are minuscule. We must prevent the initial investment in
developing
training from subsequently getting stuck in outdated learning and
evaluation
models. Content presents 6 “How’s” for modernizing training:
1.
Refresh content and materials frequently
2.
Train
teams
3.
Elevate importance of exercises
4.
Use
spaced reinforced interval learning
5.
Put
equal emphasis on just-in-time training
Individual Preparedness
Be
Ready to
Go: Evacuation Transportation Planning Tips for People with Access and
Functional Needs
(2010)
Be Ready To Go:
Disability-Specific Supplies For Emergency Kits (2010)
Be Real,
Specific, and Current: Emergency Preparedness Information for People
with
Disabilities and Others with Access and Functional Needs,
Edition
1.0, (2016) General
emergency preparedness information is important for everyone,but does not
always equally applicable for people with
disabilities. These
materials can be more inclusive when they contain information that
focuses on
specific functional needs.
Offers
guidance, examples, and
resources on promoting or producing these materials and includes
checking that
the content:
Emergency Preparedness: Taking Responsibility For
Your
Safety - Tips for People with Activity Limitations and Disabilities (2006)
Emergency
Travel Safety Tips for Overnight Stays,
Edition 1 – October 2017 - Tips for
everyone.
[*] Items are
specifically for people with disabilities who
because of a
variety of disabilities (mobility, breathing, allergies, hearing,
seeing,
walking, understanding or chronic conditions) may have difficulty or be
unable
to: use stairwells, hear alarms, see or read exit signs and understand
instructions. Safety tips include:
check-in, personal support,
in your guest room, other safety tips and more resources.
Tips
for Emergency Use of Mobile Devices Edition 2, (2015) - Cell
phones, smart phones and other mobile wireless
devices like tablets are a big part of our lives. We rarely leave home
without
them and we often store important information on them. In a small or
large
emergency they can be a communication life line. Provides details
regarding
preparing your device to quickly get and give emergency information
which
includes a checklist, emergency contacts and documents, alerts,
texting, apps,
bookmarks of important mobile sites, “no service” backup plans, skill
drills
and other resources, also in December 2015 Use of Mobile Devices
“e-ACCESS”
newsletter at www.nfpa.org/eaccess pp. 10-24.
Be an Active
Health
Care Consume, Edition 2 (2019) Health
care providers
deserve respect, not worship! The old “doctor
always knows best” attitude is outdated. You must speak up or you may
not get
important care. Being passive can be dangerous to your health. Contents
include:
Determine
Your Priorities
Health Care
Self Advocacy Skills
Survey
Being Active
Trusting
Your Life Experience and
Your Common Sense
Quiz: Are
You an Active or Passive
Health Care
Consumer?
Health Care
Visit Strategy Quiz
Accessibility
Planning
Plan Ahead
Accessibility
Planning Checklist
Effectively
Communicating with
Health Care Providers
The DES
Script: A Tool for Improving
Communication
Types of
Helpful and Not Helpful
Communication
Chief
Complaint / Reason for Visit
Understanding
and Remembering
Information from Visits with Health Care Providers
Take A
Support Person with You
Effectively
Working with Your
Support Person
Take Notes
Record
Your Appointments
Ask
for Pictures
Get
Your Test Results
Test
Result Communication Form
Competency Planning Checklists for Providing
Health Care for
People with Disabilities (2016) - The purpose of
these gap analysis
checklists is to assist health care professionals in evaluating their
attitudes
toward participants with disabilities, their current capacity to
provide
physical, communication, medical equipment, services and program
access, as
well as care coordination for participants with disabilities. Health
care
providers can use these checklists as an actionable practice competency
assessment. These tools should assist providers in complying with
Centers for
Medicare and Medicaid Services (CMS) expectations for services for
Medicaid and
Medicare populations with disabilities. Health Plan professionals
can use
these checklists to check if their policies and procedures, as well as
the
training they offer is inclusive of these access elements. These
questions are
not meant to be graded, but rather to be used as a planning tools to
help
identify opportunities for improvements, set priorities, and to track
improvements over time.
Health
Care Rights for People with Disabilities (2015)
Health
plans must provide access to health care
services including preventive care and necessary services. California’s
Department
of Managed Health Care provides this content to help Californians with
disabilities understand their rights and get the care they need.
Topics
include:
Communication
Assistance - Hearing
Communication
Assistance - Hearing-Deaf
Communication
Assistance - Vision
Keeping
Your Doctor - Continuity of Care
Getting
Health Care Benefits and Services
Making Preventive
Health Care
Work for You – A Resource Guide for People with Physical Disabilities, (2006)
screen reader version
Information
and tools regarding:
Quality
Services for People with Disabilities and Activity Limitations – Health
Care Video
Series, 2012
Who are People with
Disabilities
and
activity
limitations and explores how disability increases with age. 14 minutes
Hassle
factors experienced by people with disabilities and activity
limitations when getting
health care.
How
health
care worker’s Attitudes
and Beliefs toward people with disabilities and activity
limitations can affect he quality of health care. 37 minutes
Tips for
Planning a
Rapid
Emergency COVID-19 (Coronavirus) Response
Health Plans
–
Strengthening Emergency Roles and Partnerships 2,20,20 -
Policy Paper covers:
Access to
Medical Care for Individuals with
Mobility Disabilities (May 2010), (last
accessed 9.14.10) U.S. Department of
Justice, Civil Rights Division, Disability Rights Section. Provides
guidance
for medical care professionals on the ADA’s requirement to provide
accessible
health care to individuals with mobility disabilities and includes an
overview
of general ADA requirements, commonly asked questions, and illustrated
examples
of accessible facilities, examination rooms, and medical equipment.
Exam
Room
Selection for Accessible Examination Tables & Chairs
(2010)
Covers:
Health Care
(clinic/outpatient) Facilities Access (2008), (last accessed
9.14.10), Covers:
Basics of physical access for clinicians and medical
office staff, provides links and listing including:
Importance
of Accessible Examination Tables & Wheelchair Scales
(2010)
Covers:
Improving
Accessibility with Limited Resources (2008), (last accessed 9.14.10),
Covers:
People
with
Disabilities and Chronic Conditions – Health Care Competency Training
and
Materials for health care practitioners: includes materials
and
videos regarding:
Quality
Services for People with Disabilities and Activity Limitations
(2011)
Tools
For Decreasing Health Care Barriers (2009)
Transfer
Assistance For
People with Mobility and Disability
Limitations On And Off an Exam Table,
(2017) 4.2
minutes
Questions
to Ask for Identifying Communication and Accommodation Needs
(2016) - Many people need access related to communication,
mobility and
service. Many of these people do not identify as having a disability.
Therefore, it is important to ask people about these needs. Attention
to the
details is critical when identifying and meeting communication and
accommodation needs. Asking a key question of all people can help to
accomplish
this.
Please let us know if you
find
broken links on this page 
jik@pacbell.net
© 1998 -
2021 June Isaacson
Kailes, Disability Policy Consultant, All Rights Reserved.
Created 11/8/97
| Updated 04.28.23