Publications and Media
New or Updated
Defining Functional Needs - Updating CMIST (2017) - A CMIST update resulting from the evolving of terms as well as the clarity, precision, and specificity of our thinking and practice. CMIST is a memory tool to help people remember and plan for the five functional needs individuals that may have in an emergency or disaster: communication; maintaining health; independence; support, safety and self-determination; and transportation.Emergency plans based on optimizing function rather than “specialness” increases the chance of successful accommodation of predictable needs. For example, the fact that people have survived a stroke, tells us nothing about their functional needs for maintaining their health, safety and independence, which can range from no needs to many needs.
Travel Safety Tips for Overnight Stays,
Edition 1 – October 2017 - Tips for
Items with a [*] are specifically for people with disabilities who
because of a
variety of disabilities (mobility, breathing, allergies, hearing,
walking, understanding or chronic conditions) may have difficulty or be
to: use stairwells, hear alarms, see or read exit signs and understand
instructions. Safety tips include
check-in, personal support,
in your guest room, other safety tips and more resources.
Inclusive Event Procedures for Emergencies, Edition I, October 2017 - Event procedures for emergencies should be incorporated into event planning. Emergency procedures should anticipate the needs of everyone. Planning should recognize that there will be attendees with disabilities who may need evacuation or other assistance in an emergency. These attendees have a variety of disabilities (mobility, breathing, allergies, hearing, seeing, reading, understanding) or chronic conditions and may have difficulty or be unable to: use stairwells, hear alarms, see or read exit signs and understand instructions. Contents include: applying emergency planning strategies, safety considerations for site selection, projecting numbers of attendees with disabilities, checklist for inclusive emergency safety briefings for attendees, emergency planning with event facilities staff and more resources. Readers should use this emergency event guidance in conjunction with information found in “Accessible Meetings, Events, and Conferences Guide.” http://www.adahospitality.org/accessible-meetings-events-conferences-guide/bookThe National Shelter System and Physical Accessibility - Time to Look Under the Hood (2017) - focuses on physical accessibility, one of the many mass care criteria used by the American Red Cross’s National Shelter System (NSS). This focus on facility access is motivated by being repeatedly told, in my role as a trainer, consultant and policy analyst, by emergency management professionals that they do not need to survey their mass care sites for physical accessibility, because they can depend on the information in the NSS.
Training: Maximizing Your ROI! (2015) - In the emergency management world, applying lessons can make the difference between life and death for people with disabilities and others with access and functional needs. It’s about impact and outcomes. The goal is not just lessons observed, documented, or heard about, but lessons repeatedly applied, so we can eventually claim them as lessons learned.
Recent disaster response have highlighted and reinforced for me that our current training models need modernizing. Time and budgets for training are miniscule. We must prevent the initial investment in developing training from subsequently getting stuck in outdated learning and evaluation models. Presents 6 “How’s” for modernize training:
1. Refresh content and materials frequently
2. Train teams
3. Elevate importance of exercises
4. Use spaced reinforced interval learning
5. Put equal emphasis on just-in-time training
evaluation methods that measure delivery effectiveness, performance,
Health Care Rights for People with Disabilities (2015)
Health plans must provide access to health care services including preventive care and necessary services. California’s Department of Managed Health Care provides this content to help Californians with disabilities understand their rights and get the care they need.
Physical Access to Care
Communication Assistance - Hearing
Communication Assistance - Hearing-Deaf
Communication Assistance - Vision
Your Doctor - Continuity of Care
Getting Health Care Benefits and Services
Transfer Assistance For People with Mobility and Disability Limitations On And Off an Exam Table, (2017) 4.2 minutes
Using Accessible Scales to Weigh People with Mobility and Disability Limitations, (2017) 4 minutes
Accessible Meetings, Events, and Conferences
2015, Digital updated version of June Isaacson Kailes and Darrel Jones'
work, A Guide to Planning Accessible Meetings. The Mid-Atlantic ADA
Effectively Including People with Disabilities in Policy and Advisory Groups (Edition 2, 2012)
Tips for Interacting with People with Disabilities (2011)
Language Is More than a Trivial Concern! (2010)
Be Real, Specific, and Current: Emergency Preparedness Information for People with Disabilities and Others with Access and Functional Needs, Edition 1.0, (2016) Preparedness information for the general population is not always equally applicable for people with disabilities. General emergency preparedness information is important for everyone. These materials can be more inclusive when they contain information that focuses on specific functional needs.
Offers guidance, examples, and resources on promoting or producing these materials and includes checking that the content:
Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitation (2002)
Health Information: Savvy Health Care Consumer Series (2011)
Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices (2009)
Emergency power planning for people who use electricity and battery dependent assistive technology and medical devices Checklist and Podcast (2013)
Preparedness for Personal Assistant Services (PAS) Users, Edition 2.0,
contains tips specific to individuals who use personal assistants,
or caregivers. Planning elements include a checklist, support teams,
communication, evacuating and sheltering, supplies and resources that
more ‘how to” details. WORD
Emergency Registries - Just Because You, Know Where I Live, Doesn’t Mean You Know Where I Am! (Interview), NFPA e-Access, (National Fire Protection Association) Part 1 - June, 2014, Volume 7, Issue 1, Part II - September, 2014, Volume 7, Issue 2.
Supplies Kits for People with Disabilities and Activity Limitations, 2010,
Edition 2.0, 2016 Checklist
suggests emergency kit contents including no cost supplies, that you
to your needs and abilities. Kits to consider for different places and
situations: keep it with you, grab and go, home, bedside and car.
suggestions are made for hearing, speech and communication and vision
well as for wheelchair and scooter users, service animal owners and
allergies, chemical sensitivities and breathing conditions. WORD
Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities (2006)
Functional Needs Focused Care and Shelter Checklist (2009)
Guidance for Integrating People with Disabilities in Emergency Drills, Table Tops and Exercises Edition 1, (2015) - Guidance prepared for North Carolina Emergency Management. It uses the Homeland Security Exercise and Evaluation Program (HSEEP) Master Task List format commonly used in the field to provide a set of guiding principles for exercise programs, as well as a common approach to exercise program management, design and development, conduct, evaluation, and improvement planning. The second column is what is new and focuses on steps to recruit, accommodate, include, and get feedback from people with disabilities and others with access and functional needs in exercises. Also includes suggestions for injects that can be tailored to specific exercise.
Moving Beyond "Special Needs" A function-based framework for emergency management and planning, (2007)
Out-of-town emergency contacts listed in priority order (first person reached calls others on this list) (2015)
Tips for Emergency Use of Mobile Devices Edition 2, (2015) - Cell phones, smart phones and other mobile wireless devices like tablets are a big part of our lives. We rarely leave home without them and we often store important information on them. In a small or large emergency they can be a communication life line. Provides details regarding preparing your device to quickly get and give emergency information which includes a checklist, emergency contacts and documents, alerts, texting, apps, bookmarks of important mobile sites, “no service” backup plans, skill drills and other resources, also in December 2015 Use of Mobile Devices “e-ACCESS” newsletter at www.nfpa.org/eaccess pp. 10-24.
Competency Planning Checklists for Providing Health Care for People with Disabilities (2016) - The purpose of these gap analysis checklists is to assist health care professionals in evaluating their attitudes toward participants with disabilities, their current capacity to provide physical, communication, medical equipment, services and program access, as well as care coordination for participants with disabilities. Health care providers can use these checklists as an actionable practice competency assessment. These tools should assist providers in complying with Centers for Medicare and Medicaid Services (CMS) expectations for services for Medicaid and Medicare populations with disabilities. Health Plan professionals can use these checklists to check if their policies and procedures, as well as the training they offer is inclusive of these access elements. These questions are not meant to be graded, but rather to be used as a planning tools to help identify opportunities for improvements, set priorities, and to track improvements over time.
People with Disabilities and Chronic Conditions – Health Care Competency Training and Materials for health care practitioners: includes materials and videos regarding:
Questions to Ask for Identifying Communication and Accommodation Needs (2016) - Many people need access related to communication, mobility and service. Many of these people do not identify as having a disability. Therefore, it is important to ask people about these needs. Attention to the details is critical when identifying and meeting communication and accommodation needs. Asking a key question of all people can help to accomplish this.
© 1998 - 2018 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
Created 11/8/97 | Updated 03.17.18