is a registry?
are developed at the
community, state, regional, national, and international level. Some are
mandated by legislation. Some are commercial. Some have existed
years, while others appear and disappear, often due to competing
labor force priorities.
What is in
registry, according to the Merriam
is defined as a place where official records are kept, or a book or
keeping an official record of items.
data items can be people, e.g.
volunteers, on-call nurses, people with access and functional needs.
data items can be things, e.g.
motor vehicles, drugs, medical devices.
are used to identify
climatic conditions and trends, clinical data, effective programs,
gifts one wants, etc.
non-personnel resources may be called inventories or stockpiles.
of people have many
used can range from an
address list kept in a paper file, to sophisticated GIS oriented
can have a spatial
element -- where-- the location of the person or resource.
a temporal element -- when is
the person or resource at that location.
the where’s and when’s of
registries, inventories, and resource lists up to date can be critical
data can be submitted
voluntarily, for example by people willing to assist or be assisted in
registries are involuntary, for
example sex offender registries
registries have mandated
reporting requirements, e.g. state registries for identifying trauma
or people with HIV.
are developed for a broad
range of purposes.
are developed and maintained by
service providers, public or private, and focus on care coordination
can be of value in
identifying currently available resources, e.g. personal assistance
nurses available through a service agency.
play an important role in
are data oriented chronic
disease registries, e.g. people with cancer, diabetes, asthma.
are needs oriented registries
designed to match people with resources they are seeking, e.g. organ
waiting list registries
we are focusing on people
with disabilities and other access and functional needs, it is
remember that the word registry is also used for other types of
term “registry” is not included
in the National Response Framework glossary.
practice, the word “registry” is
used to describe different tools used in a wide variety of situations,
planning to evacuation.
between a resource
registry and a needs oriented registry
of prior experience with using
resource registries likely contribute to the assumption that
an access and functional needs registry will not be much different.
the underlying differences
between management and use of resource registry and a needs registry
identified and understood, it is likely to lead to underestimating the
complexity of managing a needs oriented registry.
management registries have
typically been used to manage resources (personnel, skills, and
are in place to keep
resource registries complete and up to date.
additional items to the
registry would increase available resources.
are local and state registries
of individuals prepared to volunteer during emergencies. These
include Citizen Emergency Response Team (CERT),
Organizations Active in Disasters (VOADs),
and health care and human service personnel such as the Medical Reserve
there is the Emergency
Systems for Advance Registration of Volunteer Health Professionals (ESAR-VHP).
is also a national Disaster
Response Registry (Central Contractor Registration CCR) for contractors
interested in performing debris removal, distribution of supplies,
reconstruction and other disaster or emergency relief activities. It is
for Award Management (SAM).
of people who may need
assistance, e.g. functional needs registries are very different than
inventories, and have to be managed and maintained differently.
must be assumed that a needs
oriented registry is incomplete, and includes only a small percentage
population (e.g., the University of Texas School of Public Health at
Brownsville estimated that 350,000 people, about 1 in every 4 Rio
Valley residents require transportation assistance for evacuation, but
11,000 have registered. (Janes, J.)
additional “items” (people)
increases the need for response resources, but does not increase the
to the CDC:
“In the context of emergency preparedness, the purpose of a registry is
identify before an event occurs those individuals who may need
assistance before, during, or after an emergency. Registries can be
the specific type of help a person needs (e.g., medical,
other special needs), or they can be used for the broader purpose of
identifying any person who might need any type of help during an
range from registries which
might assist the local emergency responders to be aware of a person’s
at a specific location, to a community assessment tool, or an
database maintained for routine use in 911 emergency response
are intended to offer a
variety of emergency assistance typically focused on one or more of the
following: evacuation (from a building or a community),
("shelter-in-place" or getting to a general population or medical
during and/or immediately after an event ) and/or after-event recovery
“lists of lists” are compiled
from administrative service records of other agencies.
not called registries, data
in government beneficiary files (recipients of public benefits and
such as Medicaid, Developmental Disabilities, Aging, Personal
Behavioral Health, etc.) databases are
sometimes considered usable for purposes beyond the original intent,
example using a homecare agency’s client list for emergency evacuation
emergency sheltering purposes.
of the people in these
databases are likely to be the part of the target population group for
this “list of lists: approach
is used, redundancy will occur when an individual is on the service
who are not clients of any
service provider will be overlooked.
emergency response systems (PERS)
technology promotes integrated, non-exclusionary
systems are commercial products
focused on emergency response, they are not used for emergency
essence, PERS are registries that
a purchaser pays a fee to be included in.
commercial systems coordinate “emergency
response” to individuals who pay for the service and security provided
on-call response system.
link an individual to the
resources needed to respond to an individual emergency – e.g. falls in
home, car crashes. OnStar advertises that it will stay with you
voice) until help arrives.
products like LifeAlert,
LifeFone, Lifeline are evolving from home based “I’ve fallen and I
up” pendant, to mobile cell phone based systems like 5Star Urgent
and Mobile Help
vehicle-based systems like OnStar
SOS and Sync
911Assist are also tied to mobile phone technology.
driven systems like Smart911
the functions of a registry, but instead of registering people, they
the phones of anyone who has created a safety profile.
approach is available to anyone in the community, with
no need to segregate individuals based on perceived needs.
user created safety profile is available only to public
911emergency call center personnel when the registered phone calls 911.
system can also collect data on resources available in
the community; e.g. an individual creating a personal safety profile
include skills or tools they were willing to volunteer in an emergency.
phone apps are also available which perform some of
non-exclusionary approach is
not unique. The U.S. State Department has a voluntary registry for
outside the US. Smart Traveler Enrollment Program (STEP) is “a
service provided by the U.S. Government to U.S. citizens who are
or living in, a foreign country. STEP allows you to enter information
your upcoming trip abroad so that the Department of State can better
in an emergency.”
perspectives on what a
registry is (add link to the opinions page)
registry is, is one of the
most essential questions in communicating about the registry with
registrants, the emergency management community, and policymakers.
a voluntary registrant’s
perspective, an emergency registry is a tool for managing personal
And provides a safety net.
a responder’s perspective, a
registry is a tool for locating a person in danger, and connecting them
fundamental dilemma in registry
effectiveness is the relationship between registrant expectation and
capacity. Hazard timing, resources, scale, and type of warning
influence that relationship.
of the multi-disciplinary
nature of the people and agencies involved with emergency management,
different expectations and sometimes competing priorities.
is essential for all involved to
agree on what the registry is, including expected outcomes for using a
tool, the protocols for achieving these outcomes; and how the registry
integrates with other parts of the emergency management system.
a minimum, this includes
emergency managers, planners, and responders for different types and
events; public health; potential registrants; resource organizations
services, e.g. transit agencies.
expect that using a
registry will improve their response effectiveness.
a registry is viewed from the
registrant's perspective, the first questions would be: What am I
registering FOR? What will it do for me? What can I
Using one of the commercial
personal emergency response systems the subscriber knows what to
know that the PERS service personnel are not coming, but that someone
on the line with them until summoned help arrives. The subscriber is
pay a subscription fee to get assistance in contacting people who can
responders to help them when assistance is needed. In a medium to large
event, the call service probably would be able to tell them that
not going to be available (e.g. the local jurisdiction’s call center is
overloaded), and subscribers would know they were on their own.
- STEP. Once
it would be prudent to compare what the registrant can expect with what
state department is capable of in various scenarios and scales.
traveler, what would you realistically expect the US Embassy or
do? Your expectation in smaller scale emergencies -- a hostage
on the Iranian border, hotel bombing in India (especially if you were a
registered hotel guest) -- would likely be different than expecting to
rescued in a massive earthquake in northern Italy or a cyclone in the
Philippines, especially if your itinerary was very flexible, and you
fixed time or place that you were going to be in the region.
beyond the question of What is a registry?
challenge is to communicate the
identified purpose of the registry clearly
most important issue to clarify
is the purpose of the access and functional needs registry.
are registry developers trying
to accomplish with this tool? Everything else flows from this issue.
is essential that all
there are multiple objectives for
using a registry, there are additional issues of whose perspective is
its development. E.g. a registry
viewed from a public health and emergency management planning
look quite different, and have a different emphasis, than a registry
from the registrants and responders perspective.
the purpose of the registry, refer to the Registry Assessment Tool
J. Number of people who need hurricane evacuation aid mostly unknown,
last accessed 03.3.14
a work in progress designed to evolve based on new learning and
feedback as new methods and tools become available.
You are encouraged to refine its content, by
providing additional resources, as well as feedback about what works,
work, or needs work. Please include
“Registry feedback” in the subject line of your message to firstname.lastname@example.org