Emergency
Registries – NEW - an expanded
discussion of
emergency registry content and recommendations covered in Getting
it Wrong: An Indictment with a Blueprint for Getting It Right (2018).
Covers the challenges and shortcomings of existing emergency registries
with
examples from recent hurricanes in Texas and Florida, as well as other
disasters. Recommendations focus on the need to look beyond emergency
registries to the new, ubiquitous technologies that more easily connect
people
with disabilities and others with access and functional needs to the
supports
and assistance they need in their communities before, during, and after
a
significant emergency.
Emergency
Registries for People with Access
and Functional Needs
By June
Isaacson Kailes and Alexandra Enders
© 2014
Emergency
registries may
seem like an easy and logical answer for addressing what are perceived
as
“special needs” for a small segment of the population. In
reality,
registry issues are complex, and the needs when functionally
defined, are
not special, and are not limited to just a small group of people with
disabilities and others with access and functional needs (Kailes
and Enders, 2007).
We
continue to discuss emergency registry
issues, and aren't quite ready to write a peer reviewed journal
article. But we
have developed so much material over the last decade that we decided it
was
time to make some of it available online.
We
are including a flowchart
and assessment tool
for making decisions about using a registry; a
compilation of opinions
about registries; background discussion on what
registries are,
and the types of registries used in emergency management; links to some of the existing registries, so
you can
see the variation that exists.
We
are still compiling additional
registry materials such as: a registry evaluation tool useful to
consumers
and community organizations; alternatives to using registries;
technology
approaches in public and private sectors; whole community planning
strategies
which fully integrate people with access and functional needs, and
registry
research needed.
These
pages represents our work in progress,
discussions, drafts of articles and content presented at workshops
and webinars.
We encourage you to help refine its content,
identify additional resources, and provide feedback about what works,
doesn’t
work, or needs work. Please include “Registry feedback” in the
subject
line of your message to jik@pacbell.net.
Emergency Registries:
Research
Due
to scarce and piecemeal research on registries, there is a lack of data
for
organizations contemplating creating and maintaining registries.
Much of
the available guidance is hypothetical and untested, especially in
large scale
emergencies. There is little to no documented evidence that when
activated
emergency registries for people with disabilities and others with
access and
functional needs have made a difference in protecting people’s life,
health,
and safety.
This is
a work in progress designed to evolve based on new learning and
continuous
feedback as new methods and tools become available. You are
encouraged to
refine its content, by providing additional resources, as well as
feedback
about what works, doesn’t work, or needs work. Please include
“Registry
feedback” in the subject line of your message to jik@pacbell.net
jik@pacbell.net
© 2014 June Isaacson
Kailes, Disability Policy Consultant, All Rights Reserved.
Created1/1/14
| Updated 03.31.19