Order Form - No charge for shipping and handling except for international orders *

June Isaacson Kailes, Disability Policy Consultant logo

 Cutting Edge Disability Resources

books, globe, pc mouse
 

logos: braille, TTY, phone volume control,assistive listening device,  ASL, Wheelchair, white cane

line

Advocacy:

 Advocacy: Reality or Rhetoric Inventory, 1999, 5 pages, $10.

 Beyond Oppression: Feeling the Movement and its Power! December, 1996, 11 pages, $15. Building and Maintaining Relationships with Elected Officials, 1998, 19 pages, $15. Disability Pride: The Interrelationship of Self-Worth, Self-Empowerment, and Disability Culture, published by the Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living, Houston, 1993, 84 pages, $20-Hard Copy. Disability Pride Inventory, 1997, 3 pages, $3. Value Your Time, Be Clear About Your Goals and Why You are Agreeing to Join, and Avoid Tokenism, 2002, 9 pages, $ 10.
Includes hard-hitting questions to ask before you join a board, group, committee, task force, panel or advisory council, and a checklist for those behaviors that may represent tokenism in the context of being a member of any of these groups. Item # 02-3
  Identifying People Who May Be Able To Assist You, 1994, 5 pages, $4. Putting Advocacy Rhetoric Into Practice: The Role of the Independent Living Center, 32 pages, published by the Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living, Houston, 1988, $10-Hard Copy.  Tips for Effective Goal Setting, 1997, 2 pages, $1. American Flag Pattern with text below-ADA AmericaWins ADA - Americans with Disabilities Act:

Accessibility Checklist for Events and Meetings, Edition 1.1,  Revised June 1998,  18 pages, $20

  Accessibility Guidelines for Speakers, Revised July 2000, 18 pages, $20. Americans with Disabilities Act Compliance Guide for Organizations, 1995, 225 pages,  Hardcover, $45.

The Americans with Disabilities Act: Questions and Answers on Employment, published by the Dayle McIntosh Center, Anaheim, California, 1992, 36 pages, $10. ADA Videos, March 1993, 10 pages, $ 5. A Guide to Planning Accessible Meetings, published by the Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living, Houston, 1993, 166 pages, Hardcover, $30. See also "Universal Design."

line


Disability Literacy:

  Language is More Than a Trivial Concern!, November 1990, Revised: 1999, 29 pages, $20. Preferred Practices to Keep in Mind as You Encounter People Who Have Disabilities, 1994, Revised 2005 Edition, 23 pages, $15.  Who are People with Disabilities? 2002, 4 pages, $3.
Reviews a variety of current statistics and reinforces that: disability: is a common characteristic and occurrence within the human experience, people with disabilities are a part of the world’s diversity, and the importance of thinking about disability broadly. Item  # 02-1
Disaster Preparedness:

Creating a Disaster - Resistant Infrastructure for People at Risk Including People with Disabilities,  November 30, 1999, 19 pages.

Report:

Power Point Presentation (16 slides)
Report prepared for: Secretariat, Committee for the Global Assessment of Earthquake Countermeasures, Five-year Assessment Project Team Disaster Management Division, Office of the Governor, Hyogo Prefectural Government, Kobe, Japan.

Primary focus of report covers people who cannot always comfortably or safely access and use some of the standard resources offered in disaster preparedness, relief and recovery. People who are "vulnerable" or "at risk." This includes, but is not limited people with limitations in vision, hearing, mobility, and cognition as well as older people, people who use life-support systems, people who use service animals, people who are culturally isolated, and people who are medically or chemically dependent. A significant number of these people don't identify as having any form of disability or limitation.

These groups represent a complex variety of concerns and challenges.  Many have very little in common beyond the fact that they are often left out of disaster preparedness planning and emergency response.

Report is based on lectures, interviews, and site visits with government and community representatives, as well as reading materials gathered during August 31 - September 4 1999. Most recommendations are accompanied by rationale and suggestions for specific content as well as reference to other resource materials.  Key recommendations include:

Other recommendations cover:

NEW! Emergency Evacuation for People with Disabilities

Living and Lasting on Shaky Ground: An Earthquake Preparedness Guide for People with Disabilities, 1996, 147 pages, $45.

Earthquake Tips Pack for People with Disabilities, 1996, 18 pages, $20. Item #  96-3

The first three tip sheets offer self-help preparation and survival tips for people with a variety of disabilities.

1.) Earthquake Tips for People with Disabilities - includes: establishing a personal support network (items to discuss, give and practice with this network); conducting an "Ability Self-Assessment;" collecting supplies to keep with you at all times; collecting disability-related supplies for emergency kits; maintaining a seven-day supply of essential medications; keeping important equipment and assistive devices in consistent, convenient and secured places; and practicing assertiveness skills.

2.) Earthquake Tips for Creating an Emergency Health Information Card - communicates to rescuers what they need to know if they find you unconscious, incoherent or need to quickly help evacuate you. Details what card should contain, gives examples and recommends where to keep copies. Includes an Emergency Health Information Card Work Sheet used to draft your card and a prototype card to use to complete your card.

3.) Earthquake Tips for Collecting Emergency Documents - details important information typically needed after a disaster.

4.) Earthquake Tips for people with specific disabilities:

Self-Reliance and Resourcefulness Are Key to Being Quake Safe, 1988, 10 pages, $ 5. Self-Reliance and R
esourcefulness: The Keys to Being Quake-Safe
, Paraplegia News, October 1985, 3 pages, reprint, $3.
Education:

A Sociometric Comparison of Mainstreamed, Orthopedically Handicapped High School Students and Nonhandicapped Classmates, Roberto Flores De Apodaca, Jan Mueller, Janice D. Watson, and June Isaacson Kailes, originally published in Psychology in the Schools, January, 1985, reprint, 7 pages, $ 4.

Health, Wellness and Aging with Disability:

audio cassette Aging With Disability, audio cassette, April 1994, approximately 60 minutes - recorder live*, $10.

Aging with Disability: Another Advocacy Priority, in The Networker, Vol. 3, No. 1, Fall/Winter January 1990, 2 pages, $3. Aging with Disability - Good News and Bad News, in Western U-View. XX: 17, 1 Page, $1.
A short overview of the issues and resources. Item # 01-4
Aging with a Disability: Educating Myself, in Generations, Journal of The American Society on Aging, Vol. XVI, No. 1, Winter 1992, 3 pages, $3. audio cassette Aging with a Disability: Planning for the Future, 1997, 60 minutes, recorded live,*  $10. audio cassette Aging with a Disability: Research Findings and Policy Implications for the Future, audio cassette 2000, approximately 90 minutes - recorder live*,  $10.
Reviews recent research findings concerning medical, functional and psychological changes in people aging with such disabilities as spinal cord injury, cerebral palsy, polio, rheumatoid arthritis and stroke and covers implications for public policy, advocacy, access to healthcare and education of healthcare providers. Speakers: Bryan Kemp, PhD, Director, Rehabilitation Research and Training Centers on Aging with a Disability and Aging with Spinal Cord Injury, Rancho Los Amigos National Rehabilitation Center, Downey, CA; Fernando Torres-Gil, MSW, PhD, Professor and Associate Dean, School of Public Policy and Social Research, University of California, Los Angeles and June Isaacson Kailes, Disability Policy Consultant. Item # 00-1


 
Bridging the Complaint Gap: Consumer - Provider Partnership

Can Disability, Chronic Conditions, Health And Wellness Coexist? 2000, 6 pages, $3.

Covers:

Item # 00-4 

  Can Disability, Chronic Conditions, Health & Wellness Coexist? Disability & Health: Action Plans & Strategies for Keeping Our Bodies Out of the Shop

Disability & Health: Action Plans & Strategies for Keeping Our Bodies Out of the Shop


audio cassette Disability and Health, a Systems Advocacy Agenda or (Keeping Your Body out of the Shop!), audio cassette 2000, approximately 90 minutes - recorder live.* $10.

Covers advocacy strategies to begin to meet the following needs:

Item # 00-2
 

Fit to be Tried,  MAINSTREAM, Volume 19, No. 9, June/July 1995,  9 pages, reprint,  $5.

Health Care Providers and Health Care Consumers: the Complaint Gap, 2001, 6 pages, $ 5.

Details patients complaints about providers and providers complaints about patients in  the areas of communication, disability issues ( knowledge and experience, access, community services and comprehensive evaluations) and respecting people's time.  A good exercise piece for cultivating discussion regarding what both groups can do to bridge this gap. Item # 01-3

Health, Wellness and Aging with Disability, 1995, Revised 2000, 80 pages, Hardcover, $40.

audio cassette Health, Wellenss and Aging with Disability: Priorities for Funders, 1998, 90 minutes, recorded live,  $10.
Suggests how funders can make some significant contributions to a very under-funded area of Health, Wellness and Aging with Disability by focusing on and devoting resources to:
1] support the production and dissemination of: best practice health care information and exercise guidelines and
2] support of consumer and advocacy organizations who focus on: access to, and  effective use of health care;  health care policy; and dissemination of information.
Illustrates the nature of the challenge by giving some brief background and a few examples; review some of the research confirming that typical age-related conditions have a greater negative impact on people who live long-term physical disabilities; and discusses how these conditions can be preventable or reduced with well timed, proactive interventions. 

Presented with Margaret Campbell at "Funding all Women - including Women and Girls with Disabilities" in Oakland, California sponsored by Grant Makers in Health 6/18/99. Item #  98-8

NEW! How To Keep Running When There Are No Trade-ins & Few Replacement Parts!




Midlife Cripdom: Getting Fewer Miles per Gallon?"
THE DISABILITY RAG, Volume 16, No. 4, July/August 1995, 16 pages, $10.
Terms, aging and cripdom, new realities and new concerns and a lot of new questions, advocating for more than health reform, a few horror stories, crip symbol hangups, misguided pride versus freedom, a few tips for weighing whether to use the gear, recommended readings, online resources, new disability resource.  Reprint, Item # 95-4

NEW! Plan Ahead When You Need Specific Disability-Related Assistance! 2003, 3 pages, Item # 03-01, $5.

A handy 25+ item checklist people with disabilities can use to plan ahead for any specific disability-related assistance they may need to successfully and effectively accomplish visits with health providers.  Even if people have seen providers before, it is helpful to remind them of specific needs.  Some items are things that people can remind providers about as they meet with them. Others, that are “flagged” are items ppl should call about and ask for their visit.
For example:

Resource List: Wellness, Self-Care, Exercise & Aging with Disability

Savvy Health Care Consumer

Savvy Health Care Consumer Tools Pack, 2001 $ 25. Item # 01-2
Unique and helpful updated set of checklists and worksheet also included in Be a Savvy Health Care Consumer, Your Life May Depend on it!

 Be a Savvy Health Care Consumer, Your Life May Depend on it!1998, 95 pages, Hardcover, $40.Item #  98-7,   Articles excerpted from this book: audio cassette Be a Savvy Health Care Consumer, audio cassette, 1997, approximately 90 minutes - recorder live*, includes handouts, $15.

Covers the concerns of people with disabilities regarding dealing with health care providers and the concerns of providers dealing with health care of people with disabilities.  Includes interactive discussion: focused on communication and respect, finding knowledgeable providers, being informed, insurance and maximizing productive time with providers. Speakers: Dorval MD; Kailes MSW, Kriegsman PhD, Badenhausen MD. Item #  97-8


Managing Your Own Health Care - You've got to be a Saavvy Consumer to Make Sure Your Needs are Met
,  MAINSTREAM, Volume 22, No. 8, May 1998,  4 pages, reprint $2.50. Item #  98-5

Independent Living:

Centers for Independent Living (CIL), 1985, Revised January 1997, 12 pages, $15.

audeo casset IL Philosophy and Practice,  January - February 1997, (3 tapes, approximately 4 hours, recorded live* , includes handouts, 75 pages) $ 45.

A Renewal of Spirit, Back to Our Roots, Getting on the Same Page! Includes: IL Paradigm / Core Principles; Advocacy: What it is and what it ain't!; oppression, pride, and identity issues - we know and like who we are; infrastructure and leadership: connecting service demand with advocacy, services litmus test and planning. Item #  97-10

People with Physical Disabilities and the Independent Living Model, 1985, with Marie Weil, as part of an anthology titled Case Management in Human Service Practice; editors Weil, Karls and Associates, Jossey-Bass Publishers, 38 pages, reprint, $10. Personal and Family Counseling, chapter in A Handbook of Services for the Handicapped, Greenwood Press, by Alfred H. Katz and Knute Martin, 1982, 16 pages, reprint, $ 10. Right to Die Issue:

Disabled Community Infuriated by ACLU's Stand on Bouvia Case, May 1984, 3 pages, reprint, $ 3.

The Right to Die or the Right to Community Support?, Spring/Summer, 1990 edition of Midwest Medical Ethics, with Maggie Shreve, 5 pages, $10. Sexuality:

Intimacy & Disability, by Waxman and Levin, assisted by Kailes, edited by Institute for Information Studies, 1982, 87 pages, $15.

Sex Counseling for Those with Spinal Cord Injuries, with Harriet E. Delgado, originally published in Social Casework, December 1974, 6 pages, Reprint, $4. Universal Design:

Barrier-Free Design Benefits All, Not Just Disabled, Los Angeles Times, August 5, 1990, Real Estate Section - Speaking Out, 2 pages, reprint, $ 1.

Barrier Free Design Can Improve Your Profit in Multiple Ways, March 1989, 7 pages, $3. Offering Access to Customers with Disabilities Expands Market Share, June 1993, 8 pages, $10.
* There may be a few small gaps in some of the tapes. Most audience questions and comments are repeated by speakers for purposes of recording, but some audience questions and comments may be faint. audeo casset

line

 Home | Web Site Map | Services | Products | Hot Resources | About June

jik@pacbell.net
© 1997-2013 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
 Created 10/10/97  |  Partial Update 01.1.13