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Individual Emergency Preparedness for People with Disabilities,
Their Families and Support Networks


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Emergency preparedness for people with disabilities and others with access and functional needs must integrate the users’ economic, physical, social and communication realities!

The challenge is to integrate and weave preparedness activities into your  typical activities daily, weekly, monthly, seasonally, yearly so they are not considered extra, ‘in addition to’, or “special projects,  but just a normal, standard & regular part of  life as usual. 


June Isaacson Kailes, Disability Policy Consultant

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Note to reader,

These resources are selected based on an informal analysis of:

Your feedback is welcome-jik@pacbell.net
 
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Guides

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10

From June Kailes [2002], contents includes:

Emergency Preparedness at Home for People with Disabilities: Guidelines , last accessed 01.29.10
Short piece [2007], contents include:
Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices, ** From June Kailes [2009], format: PDF, contents include:

Emergency power planning checklist is for people who use electricity and battery dependent assistive technology and medical devices. Electricity and battery-dependent devices include:
Some of this equipment is essential to your level of independence while other equipment is vital to keeping you
alive! This checklist can be used to make power-backup plans.
This document also contains:

Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices Checklist [2013]

Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities
Written by June Kailes for Los Angeles County Emergency Survival Program [2006] **, in: PDF, Microsoft Word 1 & 2, last accessed 01.3.12, content includes:

Feeling Safe, Being Safe – Webcasts, videos and materials developed with, for and by people with disabilities. Easy-to-use tools that employ a simple learning method, Think-Plan-Do. Uses plan language and accessible formats to ensure use by a broad rand of individuals who may have limitations in reading, understanding, learning, and remembering, Training is available through webcast individual training as well as group training. **  Last accessed 05.21.11

Personal Emergency Preparedness: Who Are Your People? last accessed 01.29.10
[2006] contents include planning for your support teams, i.e. personal relationships.


DISASTER! If you have a disability, the forces of nature can be meaner to you than anyone else. But you can fight back. Be prepared, Mainstream magazine. November 1994. last accessed 01/30/08  Disaster Preparedness for People with Disabilities, American Red Cross PDF format. last accessed 01.29.10

Disaster Preparedness Tips for PEOPLE WITH DISABILITIES** [English and Spanish]  by June Kailes - Although these "Tip Sheets" focus on earthquake safety, they are  useful for all types of disaster preparedness: power outages, fires, floods, hurricanes, nuclear power plant accidents, tornados, tsunamis, volcanoes, winter storms and very cold or very hot weather. last accessed 01.29.10

1.    People With Disabilities
2.    Collecting Emergency Documents
3.    Creating an Emergency Health Information Card
4.    People With Visual Disabilities
5.    People Who Are Hearing Impaired
6.    People With Cognitive Disabilities
7.    People With Environmental Illness or Chemical Sensitivities
8.    People With Mobility Disabilities
9.    People Who Use Life Support Systems
10. People With Communication and Speech Related Disabilities
11. People With Psychiatric Disabilities
12. Service Animals and Pet Owners

Emergency Procedures for Employees with Disabilities in Office Occupancies, PDF (1.3 MB) , Text (59 KB) provide information for facilities managers and may be useful for those individuals who might need specific assistance as to the notification of an emergency situation and/or in the evacuation of a building. last accessed 01.29.10  [1994]

Prepare in a Year – one hour a month helps you be ready for disasters whenever they occur. from the Emergency Management Division, State of Washington, last accessed 09.4.12

Preparing for Disaster for People with Disabilities – (2004) from FEMA, available in Spanish Formats: PDFTXT,  last accessed 09.4.12

Preparing Makes Sense for People with Disabilities and Other Access and Functional Needs – Video (2013) Captioned and signed, contains information specific to people with disabilities and others access and functional needs regarding emergency preparedness.

Psychological Preparedness for Stressful Events - from the Virginia, last accessed 01.3.12

Tips for Emergency Use of Mobile Devices - Edition 2, (2015) Cell phones, smart phones and other mobile wireless devices like tablets are a big part of our lives. We rarely leave home without them and we often store important information on them. In a small or large emergency they can be a communication life line. Provides details regarding preparing your device to quickly get and give emergency information which includes a checklist, emergency contacts and documents, alerts, texting, apps, bookmarks of important mobile sites, “no service” backup plans, skill drills and other resources. Last accessed 04.29.15


Food Supplies

Food and Water in an Emergency, (2004) from FEMA and American Red Cross, last accessed 08.14.13 C:\Users\Local Settings\Temporary Internet Files\OLK22\www.redcross.org\services\disaster\0,1082,0_8_,00.html

Consumer's Guide to Food Safety: Severe Storms and Hurricanes - recommendations about keeping food safe during times of power outages and flooding, last accessed 08.14.13

Keeping Food Safe During an Emergency how to determine if food is safe and how to keep food safe will help minimize the potential loss of food and reduce the risk of food related illness, last accessed 08.14.13

Food labeling - “Sell by Feb 14" is a type of information you might find on a meat or poultry product. Are dates required on food products? Does it matter?


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Evacuation

From Buildings

Evacuation and Accommodation of People with Disabilities - Project Safe EV-AC -  posted 11/23/06

Evacuation Issues For People With Disabilities Workshop – National Organization on Disability -  watch and listen!  - last accessed 01.29.10

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10 -From June Kailes [2002], contents - see description under Guides

Transportation

Access & Functional Needs Evacuation Planning Toolkit DVD supports counties in planning for the evacuation and transportation needs of all individuals during an emergency. Includes issues to consider while planning for a large scale evacuation and provides tools.  last accessed 02.28.16

Be Ready to Go: Evacuation Transportation Planning Tips for People with Access and Functional Needs. June Kailes [2010] last accessed 02.28.16
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Hazard Specific

Fire

Training and planning materials to be used by trusted community organizations to teach disaster readiness practices to people who are served by the organizations.  Useful local fire service agencies and partner community organizations to increase installation and testing of smoke alarms in high fire-risk residences, and provide effective smoke and fire safety planning by the individuals and families living in those residences. last accessed  05.21.11

Fire Risks Series: Fire Risks for Older Adults, FEMA & US Fire Administration, 1999. PDF Format, last accessed 01.3.12

Fire Safety curriculum - see description below under (Specific Functional Need Focus)
Impact of 2003 Wildfires on People with Disabilities, Format: Word, Posted 12.26.09

NFPA's Center for High Risk Outreach -
National Fire Protection Agency covers – fire safety for people with disabilities covers deaf and hear loss, autism, intellectual disabilities, older adults, urban and rural issues,  last accessed 10.7.12  

Earthquakes

Earthquake Preparedness Guide for People with Disabilities and Others with Access And Functional Needs [2014] Earthquake County Alliance


Earthquake! Coping with the aftermath can be a disaster too, for people with disabilities  Mainstream magazine, (1994). last accessed 01/30/08 book cover
Putting Down Roots in Earthquake Country, 10/85 English and Spanish, last accessed 01/17/08  - includes:

Earthquake Information from U.S. Geological Survey adena Office , last accessed 01/30/08,  includes minute by minute current information, including:

Living and Lasting on Shaky Ground: An Earthquake Preparedness Guide for People with book coverDisabilities, 1996, 147 pages.
** Format PDF: A, B, C, D, E, F

 Posted 04/16/08

Provides practical and disability-specific information used as a preparation tool for individuals with disabilities, their friends, families and service providers. Guide also serves as a training tool kit for disability-related organizations who offer workshops on earthquake preparedness for people with disabilities.

Topics includes: understanding why preparation is important, creating practical plans, identifying resources, developing strategies and putting plans into practice.

Preparedness Guide For People with Disabilities and Access & Functional Needs, Posted 12.17.11 PDF

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Lessons Documented

Disabled People and Disaster Planning a group of people primarily from Los Angeles County who met during 1996 and 1997 and formulated recommendations to reduce problems with accessibility that many people with disabilities experienced after the Northridge Earthquake of 1994. This group included individuals with disabilities and individuals from the disaster planning and response professions. ** last accessed 01/17/08

Disaster Preparedness For Persons With Disabilities Improving California's Response: A Report by The California Department of Rehabilitation, April 1997. ** last accessed 01.3.12

Emergency Preparedness and Emergency Communication Access: Lessons Learned Since 9/11 and Recommendations the work of the Deaf and Hard of Hearing Consumer Advocacy Network (DHHCAN), The report represents an extensive summary of personal experiences by individuals who are deaf and hard of hearing on the fateful day of September 11, 2001 and thereafter under different circumstances.** last accessed 12.26.09

September 11, 2001: A Day to Remember,** New Mobility, 11/0, last accessed 01/17/08

Unsafe Refuge, Why did so many wheelchair users die on Sept. 11? ** New Mobility, 12/01, last accessed 01/17/08

Why We Don't Prepare Floods, Tornadoes, Hurricanes, Wildfires, Earthquakes ..., by AMANDA RIPLEY/ BOULDER, Sunday, Aug. 20, 2006, Time Magazine –An excellent and thought provoking article. Word Format

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Supply Kits

Be Ready To Go: Disability-Specific Supplies For Emergency Kits. June Kailes [2010] last accessed 01.22.12, format PDF **

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Support Teams

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10, From June Kailes [2002], contents - see description under Guides

Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities
Los Angeles County Emergency Survival Program [2006] **, Formats: PDF, Microsoft Word 1 & 2last accessed 01.29.10,
contents - see description under Guides

Your Neighborhood

Building a neighborhood readiness plan – from the City of Los Angeles … with over 4 million people in the City, rescuers may not be able to provide immediate support to every neighborhood in need. Neighbors should be prepared to help themselves for several days to weeks depending on the size of the disaster. Last accessed 08.16.13, resources include:

Map Your Neighborhood last accessed 05.24.11

A promising practice, from Washington State, helps neighborhoods prepare for disasters

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Videos

"How To" video clips: last accessed 04/13/08  Individual Preparedness Video in American Sign Language ** last accessed 05.7.10

Students at Oregon School for the Deaf created a video in American Sign Language to help the American Red Cross Williamette Chapter in Salem, Oregon reach more people in the community. It informs people about 3 important preparedness actions for emergencies – Get a Kit, Make a Plan, and Be Informed. - 5  minutes

Preparedness Videos last accessed11.7.09

  1. 3 Steps to Get Ready  - 3 minutes
  2. Older Americans – 5 minutes
  3. American with Disabilities – 5 minutes
  4. Pets – 5 minutes (Weakness: Assumes people know what shelters will be open prior to an event. Strength: Shows how tiny an animal identification chip is.
Business Not As Usual: Preparing for a Pandemic Flu  30 minutes, Access Issues:  not captioned or audio described, text on slides is not narrated, only available in English - last accessed  11.7.09

Emergency Car Kit: 10 Essentials for a Road Evacuation -  2 minutes, last accessed  02.5.10, Access Issues: not captioned, but text transcript is included on the web page!

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Specific Functional Need Focus

Chemical Sensitivities and Allergies, last accessed 01/17/08

HEPA (High Efficiency Particulate Air Filtration) Filter Fans

Once you have sealed a room with plastic sheeting and duct tape you may have created a better barrier between you and any contaminants that may be outside. However, no seal is perfect and some leakage is likely. In addition to which, you may find yourself in a space that is already contaminated to some degree.

Consider a portable air purifier, with a HEPA filter, to help remove contaminants from the room where you are sheltering. These highly efficient filters have small sieves that can capture very tiny particles, including some biological agents. Once trapped within a HEPA filter contaminants cannot get into your body and make you sick. While these filters are excellent at filtering dander, dust, molds, smoke, biological agents and other contaminants, they will not stop chemical gases.

Some people, particularly those with severe allergies and asthma, use HEPA filters in masks, portable air purifiers as well as in larger home or industrial models to continuously filter the air.

Disaster Preparedness: A Guide for Chronic Dialysis Facilities - Produced by The Kidney Community Emergency Response Coalition.  Formats: PDFMicrosoft WordLast accessed 12.26.12

Why Asbestos is a Threat  After a Natural Disaster - Throughout most of the twentieth century asbestos was widely used in construction materials. Over time, these materials degrade and may become damaged due to a number of forces, such as renovation, remodeling, or unexpected natural disasters. Asbestos exposure is a major concern because the material is highly toxic and is known to cause a variety of disabilities and terminal diseases, including asbestosis, lung cancer, and mesothelioma.

Mesothelioma Cancer Resource Site - Asbestos was once used in thousands of products including building material. The mineral most often becomes airborne when damaged by wear and tear or a disaster. In addition to information on asbestos safety, Asbestos.net also offers information on legal and health issues faced by those who might have been exposed to asbestos during an emergency, as well as mesothelioma symptoms to watch for. Asbestos.net is a comprehensive resource on asbestos and asbestos cancers, such as mesothelioma, asbestosis and malignant lung cancer. The medical information on Asbestos.net has been reviewed by a practicing oncologist, and is dedicated to providing patients, caregivers and those at-risk with the knowledge they need to prevent and fight these asbestos-related diseases.  Last accessed  07.27.11
 

Deaf, Hard of Hearing and DeafBlind People

Building an Emergency Kit: Checklist, By Elizabeth Spiers, 2007, Association for the Deaf-Blind, Last accessed  01.11.12

Disaster Preparedness for Deaf, Hard of Hearing and DeafBlind People  - Video is signed and captioned, last accessed 12.26.09 Videos - also see above

Videos with ASL interpreters advising how to prepare for and cope with emergencies. The  18 videos also have an audible voice over and text appearing alongside the interpreter.  Along with the videos is the Emergency Preparedness Guide formatted in Braille, large print, and regular font for download. Last accessed 12.26.09
 

Receiving Information in an Emergency from Community Emergency Preparedness Network (Formats: PDF) posted 01.3.12

National Fire Protection Association’s comprehensive guide on Smoke Alarms for People Who Are Deaf or Hard-of-Hearing, (Format: PDF), last accessed 12.26.09

Developmental Disability

Feeling Safe, Being Safe Webcasts, videos and materials developed with, for and by people with disabilities. Easy-to-use tools that employ a simple learning method, Think-Plan-Do. Uses plan language and accessible formats to ensure use by a broad rand of individuals who may have limitations in reading, understanding, learning, and remembering, Training is available through webcast individual training as well as group training. **  Last accessed 05.21.11

Fire Safety curriculum through a grant from the U.S. Fire Administration and in partnership with Fire Protection Publications and Oklahoma State University, SEEDS Educational Services, Inc., created a fire safety curriculum designed to meet the learning needs of people with developmental disabilities. Available for down load by service providers who want to offer this education. Last accessed 12.18.11.

Living Safely - Pocket Edition - Self-directed learning sessions for 27 important safety skills topics, uses visual and auditory media. Targeted for people (i.e. autism, learning, understanding, and intellectual disability) who need support with understanding important safety skills necessary for daily living. Last accessed 01.21.12

Personal Assistance Services Users

Emergency Preparedness Webinar for PAS Users: Transcript, Slides Personal Assistance Center for Personal Assistance Services 8/23/13. Highlights tips relevant to individuals who use personal assistants, attendants. Planning elements include support teams, communication, evacuating and sheltering, supplies and resources that provide additional ‘how to” details on these areas. Input from online surveys and research with PAS users with real world experience with living through an emergency are also be woven into this webinar.

 Emergency Preparedness for Personal Assistant Services (PAS) Users, Edition 2.0, 2016 contains tips specific to individuals who use personal assistants, attendants or caregivers. Planning elements include a checklist, support teams, communication, evacuating and sheltering, supplies and resources that provide more ‘how to” details. WORD


Power Needs

Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices, ** From June Kailes [2009], format: PDF, contents - see description under Guides

Emergency power planning for people who use electricity and battery dependent assistive technology and medical devices Checklist and Podcast (2013) from Pacific ADA Center.

Speech

 
Limited Speech: Preparedness Checklist  last accessed 09/18/08

Service Animals


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Forms, Checklists, Tools, Sample, etc. (Format Microsoft Word), Posted 04/15/08  

Grab & Go List **

Emergency Health Information  (2011 Edition 2)** in PDF, Microsoft Word.

Communication Passport Accident and Emergency - a picture and plan text method for communicating emergency health information PDF

Emergency Neighbor Contact List  **

Out-of-town emergency contacts listed in priority order (first person reached calls others on this list)
(2015) **

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General Information

Are You Ready Guide  FEMA Guide,

American Red Cross Preparedness Publications, last accessed 12.26.09

Prepare in a Year – one hour each month helps you be ready for disasters whenever they occur. last accessed 09.4.12 , from the Emergency Management Division, State of Washington

 

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© 1998 - 2016 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
Created 11/8/97 | Updated 03.23.16