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Individual Emergency Preparedness for People with Disabilities,
Their Families and Support Networks


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Emergency preparedness for people with disabilities and others with access and functional needs must integrate the users’ economic, physical, social and communication realities!

June Isaacson Kailes, Disability Policy Consultant

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Note to reader,

These resources are selected based on an informal analysis of:

Your feedback is welcome-jik@pacbell.net
 
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Guides

Emergency Preparedness at Home for People with Disabilities: Guidelines , last accessed 01.29.10
Short piece [2007], contents include:
Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices, ** From June Kailes [2009], format: PDF, contents include:

Emergency power planning checklist is for people who use electricity and battery dependent assistive technology and medical devices. Electricity and battery-dependent devices include:
Some of this equipment is essential to your level of independence while other equipment is vital to keeping you
alive! This checklist can be used to make power-backup plans.
This document also contains:
Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities
Written by June Kailes for Los Angeles County Emergency Survival Program [2006] **, Formats: PDF, Microsoft Word 1 & 2last accessed 01.3.12, content includes:

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10
From June Kailes [2002], contents includes:

Reprint any of the written text attached for your web sites, listservs, and mailing lists. 

Feeling Safe, Being Safe – Webcasts, videos and materials developed with, for and by people with disabilities. Easy-to-use tools that employ a simple learning method, Think-Plan-Do. Uses plan language and accessible formats to ensure use by a broad rand of individuals who may have limitations in reading, understanding, learning, and remembering, Training is available through webcast individual training as well as group training. **  Last accessed 05.21.11

Personal Emergency Preparedness: Who Are Your People? last accessed 01.29.10
[2006] contents include planning for your support teams, i.e. personal relationships.


DISASTER! If you have a disability, the forces of nature can be meaner to you than anyone else. But you can fight back. Be prepared, Mainstream magazine. November 1994. last accessed 01/30/08  Disaster Preparedness for People with Disabilities, American Red Cross PDF format. last accessed 01.29.10

Disaster Preparedness Tips for PEOPLE WITH DISABILITIES** [English and Spanish]  by June Kailes - Although these "Tip Sheets" focus on earthquake safety, they are  useful for all types of disaster preparedness: power outages, fires, floods, hurricanes, nuclear power plant accidents, tornados, tsunamis, volcanoes, winter storms and very cold or very hot weather. last accessed 01.29.10

1.    People With Disabilities
2.    Collecting Emergency Documents
3.    Creating an Emergency Health Information Card
4.    People With Visual Disabilities
5.    People Who Are Hearing Impaired
6.    People With Cognitive Disabilities
7.    People With Environmental Illness or Chemical Sensitivities
8.    People With Mobility Disabilities
9.    People Who Use Life Support Systems
10. People With Communication and Speech Related Disabilities
11. People With Psychiatric Disabilities
12. Service Animals and Pet Owners

Emergency Procedures for Employees with Disabilities in Office Occupancies, PDF (1.3 MB) , Text (59 KB) provide information for facilities managers and may be useful for those individuals who might need specific assistance as to the notification of an emergency situation and/or in the evacuation of a building. last accessed 01.29.10  [1994]

Food Supplies

Prepare in a Year – one hour each month helps you be ready for disasters whenever they occur. last accessed 01.29.10, from the Emergency Management Division, State of Washington

Preparing for Disaster for People with Disabilities - Available in Spanish Formats: PDF, TXT,  last accessed 01.29.10, [2004] from FEMA

Psychological Preparedness for Stressful Events - from the virginia.gov last accessed 01.3.12


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Evacuation

From Buildings

Evacuation Issues For People With Disabilities Workshop – National Organization on Disability -  watch and listen!  - last accessed 01.29.10

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10 -From June Kailes [2002], contents - see description under Guides

Transportation

Be Ready to Go: Evacuation Transportation Planning Tips for People with Access and Functional Needs. June Kailes [2010] last accessed 01.22.12, format PDF **

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Hazard Specific

Fire

Training and planning materials to be used by trusted community organizations to teach disaster readiness practices to people who are served by the organizations.  Useful local fire service agencies and partner community organizations to increase installation and testing of smoke alarms in high fire-risk residences, and provide effective smoke and fire safety planning by the individuals and families living in those residences. last accessed  05.21.11

Fire Risks Series: Fire Risks for Older Adults, FEMA & US Fire Administration, 1999. PDF Format, last accessed 01.3.12

Fire Safety curriculum - see description below under (Specific Functional Need Focus)

Impact of 2003 Wildfires on People with Disabilities, Format: Word, Posted 12.26.09

NFPA's Center for High Risk Outreach, last accessed 01/30/08

Earthquakes

Earthquake! Coping with the aftermath can be a disaster too, for people with disabilities  Mainstream magazine, (1994). last accessed 01/30/08 book cover
Putting Down Roots in Earthquake Country, 10/85 English and Spanish, last accessed 01/17/08  - includes:

Earthquake Information from U.S. Geological Survey Pasadena Office , last accessed 01/30/08,  includes minute by minute current information, including:

Living and Lasting on Shaky Ground: An Earthquake Preparedness Guide for People with book coverDisabilities, 1996, 147 pages.
** Format PDF: A, B, C, D, E, F

 Posted 04/16/08

Provides practical and disability-specific information used as a preparation tool for individuals with disabilities, their friends, families and service providers. Guide also serves as a training tool kit for disability-related organizations who offer workshops on earthquake preparedness for people with disabilities.

Topics includes: understanding why preparation is important, creating practical plans, identifying resources, developing strategies and putting plans into practice.

Preparedness Guide For People with Disabilities and Access & Functional Needs, Posted 12.17.11 PDF

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Lessons Documented

Disabled People and Disaster Planning a group of people primarily from Los Angeles County who met during 1996 and 1997 and formulated recommendations to reduce problems with accessibility that many people with disabilities experienced after the Northridge Earthquake of 1994. This group included individuals with disabilities and individuals from the disaster planning and response professions. ** last accessed 01/17/08

Disaster Preparedness For Persons With Disabilities Improving California's Response: A Report by The California Department of Rehabilitation, April 1997. ** last accessed 01.3.12

Emergency Preparedness and Emergency Communication Access: Lessons Learned Since 9/11 and Recommendations the work of the Deaf and Hard of Hearing Consumer Advocacy Network (DHHCAN), The report represents an extensive summary of personal experiences by individuals who are deaf and hard of hearing on the fateful day of September 11, 2001 and thereafter under different circumstances.** last accessed 12.26.09

September 11, 2001: A Day to Remember,** New Mobility, 11/0, last accessed 01/17/08

Unsafe Refuge, Why did so many wheelchair users die on Sept. 11? ** New Mobility, 12/01, last accessed 01/17/08

Why We Don't Prepare Floods, Tornadoes, Hurricanes, Wildfires, Earthquakes ..., by AMANDA RIPLEY/ BOULDER, Sunday, Aug. 20, 2006, Time Magazine –An excellent and thought provoking article. Word Format

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Supply Kits

Be Ready To Go: Disability-Specific Supplies For Emergency Kits. June Kailes [2010] last accessed 01.22.12, format PDF **

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Support Teams

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations -  ** last accessed 01.29.10, From June Kailes [2002], contents - see description under Guides

Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities
Los Angeles County Emergency Survival Program [2006] **, Formats: PDF, Microsoft Word 1 & 2last accessed 01.29.10,
contents - see description under Guides

Map Your Neighborhood last accessed 05.24.11

A promising practice, from Washington State, helps neighborhoods prepare for disasters

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Videos

"How To" video clips: last accessed 04/13/08  Individual Preparedness Video in American Sign Language ** last accessed 05.7.10

Students at Oregon School for the Deaf created a video in American Sign Language to help the American Red Cross Williamette Chapter in Salem, Oregon reach more people in the community. It informs people about 3 important preparedness actions for emergencies – Get a Kit, Make a Plan, and Be Informed. - 5  minutes  

Business Not As Usual: Preparing for a Pandemic Flu  30 minutes, Access Issues:  not captioned or audio described, text on slides is not narrated, only available in English - last accessed  11.7.09

Emergency Car Kit: 10 Essentials for a Road Evacuation -  2 minutes, last accessed  02.5.10, Access Issues: not captioned, but text transcript is included on the web page!

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Specific Functional Need Focus

Chemical Sensitivities and Allergies, last accessed 01/17/08

HEPA (High Efficiency Particulate Air Filtration) Filter Fans

Once you have sealed a room with plastic sheeting and duct tape you may have created a better barrier between you and any contaminants that may be outside. However, no seal is perfect and some leakage is likely. In addition to which, you may find yourself in a space that is already contaminated to some degree.

Consider a portable air purifier, with a HEPA filter, to help remove contaminants from the room where you are sheltering. These highly efficient filters have small sieves that can capture very tiny particles, including some biological agents. Once trapped within a HEPA filter contaminants cannot get into your body and make you sick. While these filters are excellent at filtering dander, dust, molds, smoke, biological agents and other contaminants, they will not stop chemical gases.

Some people, particularly those with severe allergies and asthma, use HEPA filters in masks, portable air purifiers as well as in larger home or industrial models to continuously filter the air.

Why Asbestos is a Threat  After a Natural Disaster

Throughout most of the twentieth century asbestos was widely used in construction materials. Over time, these materials degrade and may become damaged due to a number of forces, such as renovation, remodeling, or unexpected natural disasters. Asbestos exposure is a major concern because the material is highly toxic and is known to cause a variety of disabilities and terminal diseases, including asbestosis, lung cancer, and mesothelioma. Unfortunately, these diseases are almost always diagnosed in late stages of development after receiving a mesothelioma prognosis, and are highly resistant to treatment. For example, a treatment rarely acts as a mesothelioma cure because the cancer is so aggressive, and in most cases it is diagnosed far too late.

The Mesothelioma Cancer Center provides information on what steps to take prior to, and after each particular natural disaster occurs—in order to help prevent exposure to asbestos.


Permanently removing asbestos from the home can be extremely expensive. However, companies such as GLOBAL Encasement, Inc. have begun making extremely affordable, environmentally friendly products that are designed to manage hazardous materials, including asbestos, lead-based paint, mold and mildew. Posted 02.21.09

Deaf, Hard of Hearing and DeafBlind People

Building an Emergency Kit: Checklist, By Elizabeth Spiers, 2007, Association for the Deaf-Blind, Last accessed  01.11.12

Disaster Preparedness for Deaf, Hard of Hearing and DeafBlind People  - Video is signed and captioned, last accessed 12.26.09 Videos - also see above

Videos with ASL interpreters advising how to prepare for and cope with emergencies. The  18 videos also have an audible voice over and text appearing alongside the interpreter.  Along with the videos is the Emergency Preparedness Guide formatted in Braille, large print, and regular font for download. Last accessed 12.26.09
 

Receiving Information in an Emergency from Community Emergency Preparedness Network (
Formats: PDF) posted 01.3.12

National Fire Protection Association’s comprehensive guide on Smoke Alarms for People Who Are Deaf or Hard-of-Hearing, (Format: PDF), last accessed 12.26.09

What to Do in an Emergency? By Elizabeth Spiers, 2007, Association for the Deaf-Blind, Last accessed  01.11.12


Developmental Disability

Feeling Safe, Being Safe Webcasts, videos and materials developed with, for and by people with disabilities. Easy-to-use tools that employ a simple learning method, Think-Plan-Do. Uses plan language and accessible formats to ensure use by a broad rand of individuals who may have limitations in reading, understanding, learning, and remembering, Training is available through webcast individual training as well as group training. **  Last accessed 05.21.11

Fire Safety curriculum through a grant from the U.S. Fire Administration and in partnership with Fire Protection Publications and Oklahoma State University, SEEDS Educational Services, Inc., created a fire safety curriculum designed to meet the learning needs of people with developmental disabilities. Available for down load by service providers who want to offer this education. Last accessed 12.18.11.

Living Safely - Pocket Edition - Self-directed learning sessions for 27 important safety skills topics, uses visual and auditory media. Targeted for people (i.e. autism, learning, understanding, and intellectual disability) who need support with understanding important safety skills necessary for daily living. Last accessed 01.21.12



Power Needs

Emergency Power Planning for People Who Use Electricity and Battery Dependent Assistive Technology and Medical Devices, ** From June Kailes [2009], format: PDF, contents - see description under Guides

Speech

 
Limited Speech: Preparedness Checklist  last accessed 09/18/08

Service Animals


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Forms, Checklists, Tools, Sample, etc. (Format Microsoft Word), Posted 04/15/08  

Grab & Go List **

Emergency Health Information  ** guides you through developing your emergency health information. You should keep copies of this information in your wallet (behind driver's license or official identification card) and emergency kits. It tells rescuers important information about you if they find you unconscious, or unable to provide information. It contains information about your medications, equipment, allergies, communication difficulties, preferred treatment and medical providers, and important contact people. Posted 12.17.11, Formats: PDF, Microsoft Word.

Emergency Neighbor Contact List  **

Out-of-town emergency contacts listed in priority order (first person reached calls others on this list)
  **

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General Information

Are You Ready Guide  FEMA Guide,

American Red Cross Preparedness Publications, last accessed 12.26.09

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© 1998 - 2012 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
Created 11/8/97 | Updated 01.22.12