Putting Advocacy Rhetoric Into Practice: The Role of the Independent
Living Center

TABLE OF CONTENTS
INTRODUCTION
WHY ADVOCACY IS SO IMPORTANT
ADVOCACY AND SERVICES: THE DUAL ILC COMMITMENT
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Consumer Involvement in ILCs
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Consumer Advocacy's Place in Direct Services
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Fostering Self-help Assertion and Survival Skills in Consumers
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An Illustration of Consumer Empowerment
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Avoiding "Doing Too Much" For Consumers
ESTABLISHING AN EFFECTIVE SYSTEMS ADVOCACY APPROACH
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Independent Living Networks
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State Networks: The California Example
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Cautions Regarding Lobbying and Advocacy
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Complying With Restrictions on Lobbying
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Need to Determine Advocacy Priorities
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Setting Major Advocacy Issues Dealing with Crop-up Issues
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Prioritizing and Monitoring Activities with Outside Organizations
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Developing Position Statement
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Using Spokespeople with Disabilities
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Maintaining Contact with Elected Representatives
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Tracking and Communicating Outcomes
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Disseminating Information about Community Successes and Advocacy Impact
DEVELOPMENT OF NEW DISABILITY LEADERSHIP
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Scarcity of New Leaders for the Movement
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In Order to Get Power We Must Give Power
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Negative Effects of 'Turfism'
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Providing Support of Advocacy Groups
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Recruiting Consumers
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Preventing or Reducing the Impact of Burnout
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Successful Image
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Cloning
ISSUES NEEDING FURTHER ATTENTION AND DEBATE
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Amount of Time and Resources to Devote to Systems Advocacy
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What Constitutes Representative Consumer Input?
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Who is Responsible for Systems Advocacy?
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Threat of Co-optation
CONCLUSION
REFERENCES ANDADDITIONAL READINGS
APPENDIX: REPRESENTATIVE CONTACT SHEET
ABOUT THE AUTHOR AND ACKNOWLEDGMENTS

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© 1998 June Isaacson Kailes,
Disability Policy Consultant, All Rights Reserved.
Created 7/7/97
| Updated 6/15/98 | Since 6/15/98 Accessed # 5,538