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HEALTH FOCUSED PUBLICATIONS

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HEALTH, WELLNESS AND AGING WITH DISABILITY PUBLICATIONS

  1. Bullock, K., Taylor (1981). Guidelines for Discussion of Videotape: Reflections on Adolescence (Instructor's Manual). Los Angeles, Orthopedic Hospital.
  2. Kailes, J. (1981). Sexuality and Disability and The Social, Political & Economic World of Disability, Wright Institute of Los Angeles.
  3. Kailes, J., Katz, A., Martin, K.,(1982). Personal and Family Counseling. A Handbook of Services for the Handicapped. Greenwood Press.
  4. Kailes, J. (1989). "Aging With A Disability: Another Advocacy Priority." Options 3(1).
  5. Kailes, J. (1990). Aging With A Disability: Another Advocacy Priority. Networker, Uniited Cerbral Palsy Association. 3.
  6. Kailes, J. (1991). Aging With A Disability: Another Advocacy Priority. Aging, Disability and the Nation's Productivity, Switzer Monograph, National Rehabilitation Association.
  7. Kailes, J. (1992). "Aging With A Disability: Educating Myself." Generations, Journal of the American Society on Aging XVI(1).
  8. Kailes, J. (1992). Aging With A Disability: Educating Myself. Aging and Disabilities: Seeking Common Ground, Editors. A. Eustis, Baywood Publishing Company, Inc. Amityville, New York.
  9. Kailes, J. (1995). "Fit to be Tried." Mainstream 19(9): 37-46.
  10. Kailes, J. (1995, 1997, 1998, 2000). Health, Wellness and Aging with Disability, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  11. Kailes, J. (1995). "Midlife Cripdom: Getting Fewer Miles per Gallon?" The Disability Rag 16(4).
  12. Kailes, J. (1995, 1996, 2002). Resource List: Wellness, Self-Care, Exercise & Aging with Disability, Edition V-12/02, http://www.westernu.edu/cdihp/resourceindex.htm.
  13. Kailes, J. (1996, 1997, 1998, 2001, 2002). Be a Savvy Health Care Consumer Your Life May Depend on It!, Edition 5, 1st Edition 1997, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  14. Kailes, J. (1998). Managing Your Own Health Care - You've got to be a Savvy Consumer to Make Sure Your Needs are Met. MAINSTREAM. 22: 31-34.
  15. Kailes, J. (1999). Bridging the Great Divide Independent Living and Health Care: Systems Change Strategies and Resources--Learning from the Trenches., ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  16. Kailes, J. (2000). Can Disability, Chronic Conditions, Health and Wellness Coexist?, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net., http://www.ncpad.org/wellness/fact_sheet.php?sheet=106
  17. Kailes, J. (2000). Resource List: Wellness, Self-Care, Exercise & Aging with Disability, Edition V, http://www.westernu.edu/cdihp/resourceindex.htm.
  18. Kailes, J. (2001). Aging with Disability - Good News and Bad News. Western U-View. XX: 17.
  19. Kailes, J. (2001). Health Care Providers And Health Care Consumers:The Complaint Gap, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  20. Kailes, J. (2001). Health and Wellness for Women With Disabilities. Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel Hill, NC  27599-8185.
  21. Kailes, J. (2001). Making the Most of Your 15 Minutes. Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel Hill, NC  27599-8185: 54.
  22. Kailes, J. (2002). Are you an active partner in your health care? The IEHP Pulse, Member Newsletter, 303 E. Vanderbilt Way, Suite 400, San Bernardino, CA 92408. 13: 8.
  23. Kailes, J., Delgado, H. (1974). "Sex Counseling for Those with Spinal Cord Injuries." Social Casework 55(10): 622-627.
  24. Kailes, J., Richards, L., Heinsohn, D., Lin, R., Shepard, R. (1999). Teleconference: Bridging the Great Divide - Independent Living and Health Care: Individual Services, Advocacy and Resources. Houston, IL Net: NCIL/ILRU, 2323 S. Shepherd, Suite 1000, Houston, TX 77019.
  25. Premo, B., Kailes, J., Schwier, E., Richards, C., (2003). Adults with Disabilities in Medi-Cal: The Beneficiary Perspective, Medi-Cal Policy Institute, 476 Ninth Street, Oakland, CA 94607, Tel: 510.286.8976, Fax: 510.238.1382, http://www.medi-cal.org/topics/view.cfm?itemID=21512.
  26. Kailes, J., Shimomura, S., McGory, R., Premo, B. (2003). Pharmacy Times, Communicating with Your Deaf and Hard-of-Hearing Patients, September 2003, http://www.pharmacytimes.com.
  27. Story, M., Winters, JMW.,Premo, B., Kailes, J., Winters, JM. (2003). Understanding Barriers to Healthcare Caused by Inaccessible Medical Instrumentation. In Proceedings of RESNA 2003 International Conference. Arlington, VA: RESNA Press.
  28. Kailes, J. Emergency Health Information: Savvy Health Care Consumer Series, 2004. Published and distributed by Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone: (909) 469‑5380, TTY (909) 469-5520, Fax: (909) 469‑5407, www.cdihp.org.
  29. Kailes, J., The Health Care Partnership: Barriers to Care- Part 2: The Consumer's Viewpoint, in: Kemp, B., Mosqueda, L., Ed. (2004). Aging with a Disability: What the Clinician Needs to Know, John Hopkins University Press.
  30. Winters, JMW., Story, M., Barnekow, K., Premo, B., Kailes, J., Schwier, E., Winters, JM. (2004). A Delphi Study to Develop a National Survey of Accessibility of Medical Instrumentation. In Proceedings of RESNA 2004 International Conference. Arlington, VA: RESNA Press.
  31. Winters, JMW, Story, MF, Barnekow, K, Premo, B, Kailes, JI, Schwier, E, Winters, JM (2004). A National Survey of Accessibility of Medical Instrumentation. In Proceedings of RESNA 2004 International Conference. Arlington, VA: RESNA Press.
  32. Kailes, J., Mac Donald, C. ADA Resources, 2004. Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu.
  33. Kailes, J., Mac Donald, C. Importance of Accessible Weight Scales, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu .
  34. Kailes, J., Mac Donald, C. Choosing & Negotiating an Accessible Business Location, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products, Email ahcs@westernu.edu . 
  35. Kailes, J., Mac Donald, C. Health Care Facilities Access, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  36. Kailes, J., Mac Donald, C. Importance of Accessible Examination Equipment, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu .
  37. Kailes, J., Mac Donald, C. Improving Accessibility with Limited Resources  2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  38. Kailes, J., Mac Donald, C. Tax Incentives for Improving Accessibility, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  39. Kailes, J., Mac Donald, C. Tools for Decreasing Health Care Barriers, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, voice/TTY (800) 832-0524, available at www.cdihp.org/products.html, Email: ahcs@westernu.edu .
  40. Schwier, E., Kailes, J., Jansma, M., Premo, B., Mac Donald, C. The Experiences and Perspectives of Medi-Cal Consumers with Disabilities, August 2004, Inland Empire Health Plan, http://ww2.iehp.org/NR/rdonlyres/CA369D24-53B0-41B8-BB58-C645908B5BBB/0/CDIHPreport.pdf
  41. Kailes, J. Shield Your Health: Making Preventive Health Care Work for You – A Resource Kit for People with Physical Disabilities, 2005. Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854; voice/TTY 1-800-832-0524; e-mail ahcs@westernu.edu.
  42. Center for Disabilities Issues & the Health Professions,  Center for Health Care Strategies, and The Lewin Group, (2005) Developing Health Plan Performance Standards for Serving People with Disabilities in Medi-Cal, www.chcf.org.
  43. Kailes, J. (2005). Workshop on Disability in America, an New Look: summary and papers: based on a workshop of the Committee on Disability in America: a New Look, Board on Health Sciences Policy. Field, M., Jette, J.M., and  Martin, L. editors,  Chapter K - A User's Perspective on Midlife (Ages 18-65) Aging with Disability, Institute of Medicine.
  44. Palsbo, S., Kailes, J. (2006). "Disability-Competent Health System." Disability Studies Quarterly 26(2)..
  45. Kailes, J.I. (2006). The Patient’s Perspective on Access to Medical Equipment. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibility and Usability Considerations (pp. 3-14). Boca Raton, FL: CRC Press.
  46. Winters, JMW., Story, M., Barnekow, K., Kailes, J., Premo, B., Schwier, E. (2006). Results of a National Survey on Accessibility of Medical Instrumentation for Consumers. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibilty and Usability Considerations (pp. 15-32). Boca Raton, FL: CRC Press.
  47. Kailes, J., Premo, B., & Richards, C. (2006). Toward a New Health Care Policy: Accessible Medical Equipment and Instrumentation. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibility and Usability Considerations (pp. 49-70). Boca Raton, FL: CRC Press.
  48. Kailes, J.I., (2006).  Making Preventive Health Care Work for You – A Resource Guide for People with Physical Disabilities, Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854; voice/TTY 1-800-832-0524; e-mail ahcs@westernu.edu, www.CDIHP.org
  49. Kailes, J., Premo, B., & Richards, C. (2007). Exploring Key Issues on Accessible Medical Equipment and Instrumentation: Summary of Meetings,  Published and distributed by Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone:  (909) 469‑5380, TTY (909) 469-5520, Fax: (909) 469‑5407, Email: ahcs@westernu.edu, www.CDIHP.org
  50. Story, M., Schwier, E., Kailes, J. (2009). Perspectives of patients with disabilities on the accessibility of medical equipment: Examination tables, imaging equipment, medical chairs, and weight scales. Disability and Health Journal (2) 169-179



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© 1998 - 2010 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
Created 11/8/97  |  Updated 01.21.10