Employment
Education
Publications
Selected Workshops, Presentations and Courses
Professional Activities
Selected Client List
Awards
Licenses, Certificates, Appointments

EMPLOYMENT

DISABILITY POLICY CONSULTING - Los Angeles, CA January 1985 to Present

Consults for and trains businesses, universities, state associations, government entities, centers for independent living and other not-for-profit organizations and has delivered hundreds of keynote addresses, workshops and seminars. Areas of consulting, writing and training include:

• implementing the Americans with Disabilities Act
• advocacy training and skills building (leadership development)
• health, wellness and aging with disability
• developing and analyzing public policy
• grant writing and publications
• planning barrier free meetings
• disability diversity training
• targeting disability customers in terms of marketing, customer service and product design
• telecommunications including using the Internet effectively
• disaster preparedness for people with disabilities
• short-term, strategic and long-term planning
• incorporating universal design principles into existing and new environments and products
• managing, evaluating, program developing, and fund raising for centers for independent living and other organizations

• Manages disaster preparedness projects,
• Oversees web site development and updates,
• Supervises and works directly on managed care consulting projects,
• Trains people with disabilities on strengthening health care advocacy skills,
• Develops research tools, designs implementation of research projects and oversees completion of reports,
• Develops new and continuing grants and cultivates contracts with public and private funding sources,
• Supervises Senior Policy Analyst, Consumer Training Specialist, Administrative Assistants, student interns and policy fellows,
• Teaches “Disability Competency in the Health Professions” an introduction course to disability issues for health professionals. It covers disability-related preferred etiquette practices, disability demographics, Medical and Social Models of disability, quality of life issues, culture, risk factors, secondary conditions, Americans with Disabilities Act compliance, and major disability-related public policy and ethical issues.

UNITED STATES ARCHITECTURAL AND TRANSPORTATION BARRIERS COMPLIANCE BOARD (ACCESS BOARD) -
Washington, DC., Presidential Appointment, Member, April 1995 - 2003

• Chair:
• Board March 1999 - March 2000, Vice Chair, March 1998 - March 1999, March 2000 to March 2001
• Technical Programs March 2002 to Present, Member 1995 to 2003
• Multiple Chemical Sensitivities committee, January 1999 to 2003
• Ad Hoc Committee on Telecommunication, March 1996 - March 1999
• Member Ad Hoc Committee on:
• Passenger Vessels to Present
• Public Rights-of-Way to Present
• Review of ADAAG May 2000 to Present
• Recreation,  June 1998 - Present
• Board Liaison:
• Passenger Vessel Access Advisory, Committee September 1998 to December 2000
• Telecommunication Access Advisory, Committee June 1996 - March 1997
• Play Facilities Regulatory Negotiations Committee, March 1996 - August 1996
• Air Carriers Access Act Dialogue Group with Department of Transportation,  to Present

• Directed staff of 45 with a $1.8 million budget
• Center honored as one of "The Top Five" centers in the country
• Instituted a strategic advocacy planning and review team
• Expanded services to include: independent living skills training, "linkages" project to prevent institutionalization; several volunteer programs; a South Bay office; and a computer training program
• Computerized management information systems including fund-raising records, service utilization statistics, personnel records, mailing lists, and accounting systems.
• Upgraded employee benefits and salaries, and created a salary plan adjustment for internal salary equity and step increases
• Instituted long term and annual strategic plans, providing WCIL with its first directional blueprint
• Diversified funding sources, increased annual private funds raised from $75,000 to $450,000, and established an endowment and a $300,000 reserve

• Developed and expanded peer support, career, and information and referral programs
• Established a local coalition of organizations for improving service coordination to people with disabilities
• Organized and taught courses to peer counselors
• Generated $175,000 in private support and increased fee revenues by 100%

• Provided individual, family and group psychotherapy
• Initiated one of the first programs to serve women with disabilities at Planned Parenthood
• Trained staff regarding disability-related psycho-social issues

• Established first ongoing inservice programs for allied health professionals on sexuality and disability
• Trained USC medical students and graduate social work students in psycho-social aspects of disability

• University of Southern California, Los Angeles, M.S.W.
• HOFSTRA University, Hempstead, Long Island, New York, B.A. in Psychology

PUBLICATIONS

• ADVOCACY PUBLICATIONS
• ADA PUBLICATIONS
• DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES PUBLICATIONS
• DISASTER PREPAREDNESS PUBLICATIONS
• HEALTH, WELLNESS AND AGING WITH DISABILITY PUBLICATIONS
• INDEPENDENT LIVING PUBLICATIONS

ADVOCACY PUBLICATIONS

1. Kailes, J. (1984). "Disabled Community Infuriated by ACLU's Stand on Bouvia." New World For Persons With Disabilities.
2. Kailes, J. (1987). Activists: Old, Young and In Between Must Get Their Act Together! New World For Persons With Disabilities. 14(1-Part One); 14(2-Part Two).
3. Kailes, J. (1987). "Developing New Disability Leadership." New World For Persons With Disabilities 13(11).
4. Kailes, J. (1988). "Politics and Power." Mainstream 13(5).
5. Kailes, J. (1988). Putting Advocacy Rhetoric Into Practice: The Role of the Independent Living Center. Houston, Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living and KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
6. Kailes, J. (1993). Advocacy: Reality or Rhetoric Inventory, Edition 11 - 9/99, Revised , 1995,1996, 1997,1999. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
7. Kailes, J. (1995). Beyond Oppression: Feeling the Movement and Its Power!, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
8. Kailes, J. (1997). The Ins & Outlines of Working With Elected Representatives, IL Net: NCIL/ILRU, 2323 S. Shepherd, Suite 1000, Houston, Tx  77019.
9. Kailes, J. (1997, 1998). Building and Maintaining Relationships with Elected Officials, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
10. Kailes, J. (1999). Bridging the Great Divide Independent Living and Health Care: Systems Change Strategies and Resources--Learning from the Trenches., ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
11. Kailes, J., Birster, Alice (1987). "Title 24: Our Access to Civil Rights." New World For Persons With Disabilities 14(4).
12. Kailes, J., Michaels, R. (1997). Taking Charge: Leadership and Systems Advocacy, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
13. Michaels, R., Kailes, J. (1996). Systems Advocacy: Beyond Rhetoric, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
14. Shreve, M., Kailes, J. (1990). "The Right to Die of the Right to Community Support?" Midwest Medical Ethics 6(2 & 3).
15. Premo, B., Kailes, J., & Richards, C. (2001). A Framework for Disability Public Policy in the 21st Century: Informed Choice and Consumer Empowerment: Defining, Refining & Reforming Services, American Rehabilitation Association, Switzer Seminars and monograph series, http://www.mswitzer.org/sem01/papers/premo.html.
16. Kailes, J., (2008) Community organizeing: Ground Rules for Grass Roots Organizzers, CENTER FOR INDEPENDENT LIVING Management Center & RRTC on independent living Management.
    

ADA PUBLICATIONS

1. Kailes, J. (1992). American With Disabilities Act: Questions and Answers on Employment, Dayle McIntosh Center, 13272 Garden Grove Boulevard, Garden Grove, CALIFORNIA  92843, (714) 621-3300, (714) 663-2087 TDD.
2. Kailes, J. (1993). ADA Videos, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
3. Kailes, J. (1994). Americans With Disabilities Act Compliance Guide For Food And Shelter Programs, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net and The Los Angeles Emergency Food and Shelter Program Local Board.
4. Kailes, J. (1994). Americans With Disabilities Act Compliance Guide For NonProfit Organizations, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
5. Kailes, J. (2000). Ten years after the ADA, accessibility remains elusive, CARF Connection, 4891 East Ggrant Road, Tucson, AZ 85712, http://www.carf.org/Dec00-CARFConnection/Dec2000Contents.htm.

DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES PUBLICATIONS

1. Apodaca, M., Watson & Kailes, J (1985). "A Sociometric Comparison of Mainstreamed, Orthopedically Handicapped High School Students and Non-Handicapped Classmates." Psychology in the Schools 22: 95-101.
2. Kailes, J. (1984). Language is More Than a Trivial Concern, Edition 9, Revised 1988, 1990, 1992, 1993, 1995, 1997, 1998, 1999. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
3. Kailes, J. (1986). Portraying People with disabilities: Guidelines for the Media and Entertainment Industry, in Options, Westside Center for Independent Living, 12901 Venice Boulevard, Los Angeles,CA 90066. 10.
4. Kailes, J. (1987). Barrier Free Design: An Environment Everyone Can Use. Santa Monica Evening Outlook.
5. Kailes, J. (1989). "Barrier Free Design Can Improve Your Profits in Multiple Ways." Worklife 2(3).
6. Kailes, J. (1990). Barrier Free Design Benefits All, Not Just Disabled. Los Angeles Times: K17-K18.
7. Kailes, J. (1990). Language Is More Than a Trivial Concern. Paralyzed Veterans of America Bulletin, Virginia Chapter.
8. Kailes, J. (1991). Preferred Practices to Keep in Mind as You Meet People with Disabilities, Edition 2002, Revised: 1992, 1993, 1995, 1997, 1998, 2000, 2001, 2002. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
9. Kailes, J. (1993). Accessibility Guidelines for Speakers, Editon III-July 2000, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
10. Kailes, J. (1993). Offering Access to Customers with Disabilities Expands Market Share, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
11. Kailes, J., Jones, D. (1993). A Guide to Planning Accessible Meetings, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net & ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
12. Kailes, J. (1997, 1998). Accessibility Checklist for Events and Meetings, Edition 1.1, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
13. Kailes, J. (2000). "The Language of Disability, Humanism in the Health Sciences." Western University of Health Services 4(1): 10-16.
14. Kailes, J., Holland, R., Lester, M., Brown, S. (2001). Access Aware: Extending Your Reach to People with Disabilities, Alliance for Technology Access, 2175 E Francisco Blvd., Suite L, San Rafael, CA 9490, ATAinfo@ATAccess.org, 415.455.4575, TTY 415.455.0491 http://www.ataccess.org.
15. Kailes, J. (2002). Who Are People With Disabilities and Activity Limitations?, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
16. Morales, T., Holland, R., Lester, M., Kailes, J. (2002). Starting Points, Alliance for Technology Access, 2175 East Francisco Blvd., Suite L, San Rafael, CA  94901, Voice: 415-455-4575, TTY: 415-455-0491, ATAinfo@ATAccess.org, http://www.ATAccess.org.
17. Kailes, J., Jones, D. (1993). A Guide to Planning Accessible Meetings, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net & ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.

INDEPENDENT LIVING PUBLICATIONS

1. Brown, S., Gonzalez, L. Kailes, J. (1997). For the Crime of Being Different:  Exploring Disability Rights, History, Philosophy, and Culture, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
2. Kailes, J. (1985). "Independent Living Centers." Long-Term Care Reporter 1(3).
3. Kailes, J. (1985). People with Disabilities and the Independent Living Model. Case Management in Human Service Practice. M. Weil, Karls, J, Jossey-Bass.
4. Kailes, J., Roy, K., Elias, G. (1991). The Reauthorization of The Rehabilitation Act, A report to the President and to Congress of the United States, National council on Disability, 1331 F St., NW, Suite 850  Washington, DC 2000, Voice: (202) 272-2004, TTY: (202) 272-2074: 58.
5. Kailes, J. (1993). Disability Pride: The Interrelationship of Self-Worth, Self-Empowerment, and Disability Pride. Houston, Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living.
6. Kailes, J. (1997). Centers for Independent Living, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
7. Kailes, J. (1997). Independent Living Philosophy and Practice (Two cassette tapes), KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
8. Kailes, J. (1997). Independent Living: Reality or Rhetoric Inventory, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
9. Kailes, J. (1997). So You Are Thinking of Launching a Web Site--Is It Worth the Investment?, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
10. Kailes, J., Shreve, M (1993). Training for ADA Trainers and Consultants, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
11. Kailes, J., Shreve, M. (1993). Marketing Your Center's ADA Services - Two Training Workshops. Long Beach, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
12. Michaels, R., Kailes, J. (1994). Independent Living and the Rehab Act, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
13. Michaels, R., Kailes, J., McDonald, G., Spooner, P., Jordan, H., Sykes, R., Richards, L., Dresden, C., Heinsohn, D., Kemp-Moye, D., Martinez, M., Smith, Q., and Hughey, A.M. (1995). Standards & More: Beyond Compliance--Addressing Independent Living Needs of Today & Tomorrow.
14. Michaels, R., Kailes, J., Shreve, M., Richards, L., Dresden, C., Heinsohn, D., Smith, Q., Telsford, D., and Hughey, A. M. (1994). Standards & More: Beyond Compliance.

SELECTED WORKSHOPS, PRESENTATIONS AND COURSES

• ADVOCACY
• AMERICANS WITH DISABILITIES ACT
• DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES
• DISASTER PREPAREDNESS
• HEALTH, WELLNESS AND AGING WITH DISABILITY
• INDEPENDENT LIVING
• FUND RAISING
• LONG TERM CARE
• TECHNOLOGY
• TELECOMMUNICATIONS
• UNIVERSAL DESIGN
• UNIVERSITY COURSES

Millenium Mission: Getting the Biggest Bang for That Buck! at Alliance for Technology Access Institute,Orlando, Florida, October 1999
ILNet National Teleconferences:

• Don't Toss Pebbles When You Can Launching Missiles Advocacy: Using the Internet Power Tools with Fred Fay, Patricia Yeager, Roland Sykes, David Newburger, March 1998
• So You Are Thinking of Launching a Web Site--Is It Worth the Investment? with June Kailes, Fern Moskowitz, Tony Sauer, Brian Hearn, Nancy Massey, Roland Sykes and Kathleen Kleinmann, September 1997

TAKING CHARGE, MAKING CHANGE, GETTING INVOLVED: Leadership and Systems Advocacy:

• Jasper, AL. September 1998
• Mega Super Conference on Disability Issues, Casper, WY, November 1997
• Tempe, AZ. ILNet,  February 1997
• Atlanta. GA. ILNet, October 1996
• Reno, NV.  ILNet,  April 1996
• Utah Governor's Council For People with Disabilities, Salt Lake City, November 1994

Standards and More: Beyond Compliance at Independent Living Technical Assistance Network, 1995: Portland, OR, July; Bethesda, MD, August; New Orleans, LA, September

Oppression at Pennsylvania Statewide Conference on Independent Living, Harrisburg, PA. October 1995

Self Advocacy and Disability Pride:

• Cross-Disability Conference: United We Stand, Fargo, ND. September 1995
• Liberty Resources, Philadelphia, PA. May 1994
• Utah Governor's Council for Persons with Disabilities, Salt Lake City, UT. November 1994

Squeaky Wheel Gets Greased...Getting Involved and Taking Charge at Aging and Long Term Care Network Conference, Santa Barbara County, CA. October 1994

Advocacy Skill Building Workshops:

• Austin, TX. February 1991 - 1994
• Santa Monica, CA. March 1991
• Philadelphia, PA. April & October 1990, May 1994
• Lansing, MI. May 1990

• Marketing as an Advocacy Tool, November 1991
• Are Independent Living Centers Becoming Mental Health Clinics? November 1989
• Law and Disability: Issues of Independence, October 1988 & November 1989
• Balancing Services and Advocacy - The Debate Continues, October 1988 & November 1989
• How To Make Advocacy Work in Your ILC, October 1987

• Nashua, NH. April 1992
• Kansas City, KS. July 1992
• Denver, CO. August 1992

Getting Beyound Curb Cuts at Third Southeastern "Touch the Future Conferencec, Atlanta, GA. April 1991

Putting Muscle in Independent Living Center Advocacy Efforts at Keynote Speaker at Region V Independent Living Conference, Rochester, MN. October 1990

Advocacy and Independent Living Centers - We Got Trouble in River City! at Keynote Speaker at Colorado Statewide Conference on Independent Living, Greeley, CO. September 1989

Getting Involved in Disability Issues at National Lawyers Guild Conference, Los Angeles, CA. June 1989

Legislative Update on Housing at NCIL's Sixth Annual Conference on Independent Living, Washington, D.C. May 1988

Developing New Grass Roots Leadership at NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

Public Policy Issues Affecting Independent Living at National Council on Disability, San Francisco, CA. April 1985

Elizabeth Bouvia and ACLU, as Seen by the Disabled Community at St. John's Hospital Ethics Committee, Santa Monica, CA. March 1984

Los Angeles' Minority Majority: Crystallizing a Public Relations Partnership at Public Relations Society of America, Los Angeles, CA. April 1983

Homeless Crisis For People With Disabilities at City of Santa Monica, CA. January 1983

Emergence of People With Disabilities in the Media at Annenberg School of Communications, University of Southern California (USC), Los Angeles, CA. December 1981

Who Defines Disability? at Daniel Freeman Hospital Comprehensive Resource Center, Inglewood, CA. July 1981

AMERICANS WITH DISABILITIES ACT (ADA) OF 1990:

What Makes a Meeting Accessible? Great Lakes ADA and Accessible IT Center, Audio Conference Series, August, 2004

• Access - Facities and Program Awareness,  Technology and People with Disabilities, Los Angeles,  March 2002
• Aids Project Los Angeles November 2001
• City of Santa Monica Grantees, July 2001

Complex Issues in Implementing the ADA: Planning Barrier Free Meetings, at California State University, Statewide Disabled Employment Program, Los Angeles, CA, October 1997

Customer Issues and Disability Diversity at Shell Oil, San Francisco, CA, September 1997

ADA Implementation in Public Schools
1995: Providence, RI and Middleton, CN. April; Denver, CO. June; Atlanta, GA. July; Oakland, CA and Chicago, IL. August

Evaluating for Compliance: Tips for Getting It Done, Title II

• City of Santa Monica, Grantees, CA. March 1995
• ADA Training Conference sponsored by California Department of Rehabilitation and Disabled in State Service, Sacramento. October 1994

ADA Accessibility Training for LA Regional Family Planning Clinics
California 1994: Los Angeles, March (4 trainings); San Diego, July; Oakland, October

Update of the ADA at Center for Nonprofit Management Executive Round Table, Los Angeles, CA. October 1993

Implementing ADA at USAir, Dayton, OH. October 1993

ADA's Employment Provisions for Classified Managers at Santa Monica College, CA. June 1993

Marketing Your Center's ADA Services at California Foundation of Independent Living Centers, Sacramento and Newport Beach. January and September 1993

Technical Assistance for Employers at The California Governor's Committee for Employment of People with Disabilities, Anaheim, CA. October 1992

How ADA Can Work for You: A New Form of Advocacy Power Assist at Arthritis Foundation, Los Angeles, CA. September 1992

Training for ADA Trainers and Consultants at California Foundation of Independent Living Centers, Los Angeles and Berkeley, CA. March 1992

Barrier Free Meetings: Keeping Up with a Moving Target at Association of Independent Living Centers in New York, Albany. November 1992

DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES:

Customer Services for People with Disabilities at American Public Health Association & Boston Convention and Vistor Service Bureau, MA. November 2000

Welcoming Visitors with Disabilities:

• J. Paul Getty Museum - Volunteer and Visitor Services Departments, Los Angeles, CA. 1998-Present
• Community Technology Fund, Los Angeles, CA. September 2000

FUND RAISING:

Fund Raising / Development at Cornell University, Human Services Administration Program -series of two-day regional workshops:

• 1990: Rochester, NY - July; Portland, OR - September
• 1991: Orlando, FL & Sacramento, CA - January; Nashua, NH - June; Denver, CO - July

Fund Raising and Advocacy: Coexistence Without Conflict at NCIL's Annual Conference on Independent Living, Bethesda, MD, May: 1988 & 1989

Successful Fund Raising Strategies for Independent Living Centers at NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

Foundation and Corporate Giving: From the Recipient's Perspective at Southern California Philanthropy Association, Los Angeles, CA. May 1985

Fund Raising Strategies for Independent Living Centers at Beyond Survival, A Conference on Independent Living, Denver, CO. August 1983

INDEPENDENT LIVING:

Millenium Mission: Getting the Biggest Bang for That Buck! at ILNet Leadership Training, Houston, TX. November 1999

A Renewal of Spirit: Back to Our Roots (Getting on the Same Page) at Anchorage, Alaska, October 1997

The Evolution of Independent Living at Abilities Exposition, Anaheim, CA. May 1997

IL Philosophy Training: What's Cutting Edge? What's Working? at NCIL Conference, Washington, D.C. June 1997

A Renewal of Spirit, Back to Our Roots, Getting on the Same Page, Independent Living Philosophy and Practice

• Berkeley, CA. February 1997
• Santa Barbara, CA. January, February 1997

Improving Service Systems for People with Disabilities: Findings from a Four-Year RWJF Demonstration in Eleven Sites at Society for Disability Studies, Oakland, CA. June 1995

Independent Living and The Rehabilitation Act, 1994: Atlanta, GA - February; Albany, NY - May; Bethesda, MA - June; Chicago, IL & Portland, OR - July; Los Angeles, CA - September

Philosophy Forum:

• South Central Los Angeles, CA (3 trainings). April 1994
• Independent Living Resources, Pleasant Hill, CA. June 1993
• Independent Living Resources Center, Santa Barbara, CA. August 1993
• Kansas Association of Independent Living Centers, Topeka. May, 1991
• Region V Continuing Education Program (RCEP) meeting for Illinois Independent Living Centers, Chicago, IL. July 1991
• United Cerebral Palsy of Indiana Annual Meeting, Indianapolis, IN. March 1987
• Santa Monica Westside Community Services Council, CA. September 1983

Options for Living Independently at Keynote Speaker at Independent Living and Peer Counseling Conference, Saporro, Japan. August 1989

Overview: Independent Living Centers in the USA at Third Annual Japan-USA Conference on People with Disabilities, Yokohama, Japan. August 1989

A Comprehensive Look at Independent Living Centers' Evaluation and Standards, Past and Future at
NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

The Use of Computers in Independent Living Centers at Regional Rehabilitation Network Conference, Los Angeles, CA. February 1985

The Role of the Social Worker in an Independent Living Center at Beyond Survival, A Conference on Independent Living, Denver, CO. August 1983

The Future of Independent Living Centers in the USA at Abilities Unlimited Conference, Los Angeles, CA. March 1983

Unique Choices within the Final Phase of Rehabilitationat Second Annual International Conference on Comprehensive Rehabilitation and Independent Living, Los Angeles, CA. April 1982

Sexuality and People with Disabilities at 21st Annual Institute for Social Workers in Clinical Practice, Los Angeles, CA. February 1982

Independent Living Centers as Adjuncts to Traditional Rehabilitation Services at International Conference on Comprehensive Rehabilitation and Independent Living, Los Angeles, CA. April 1981

Coalitions for Improving Services to Adolescents With Disabilities at New Otani Hotel, Los Angeles, CA. April 1981

Myths - Disability and the Classroom at Santa Monica College, CA. March 1981

LONG TERM CARE:

Future Impact of the Independent Living Movement on Disability Policy at Conference on Disability Policy: The State of the Nation, Washington, D.C. May 1987

Long Term Care Is an Independent Living Movement Issue at NCIL's Fifth Annual Conference on Independent Living, Washington, D.C. May 1987

Living with Long Term Disability at California Association for the Physically Handicapped Annual Conference, Los Angeles, CA. October 1985

TECHNOLOGY:

• Ensuring Access to Technology in the 21st Century with Jamal Mazrui, and Moira Shea
• How Section 255 of the Telecommunications Act of 1996 Will Impact on the Workplace for People with Disabilities with Susan K. Palmer,  Jeffrey D. Pledger, Jennifer J. Simpson and Dan Phythyon
  

Accessibility Guidelines for Telecommunications Equipment: What's Next? at Technology and People with Disabilities Conference, Los Angeles, CA. March 1997

Information Access Solutions at NCIL 1996 Annual Conference & Meeting, Washington, D.C. May 1996

Technology and Getting off the Curb: Funding for Assistive Technology at Touch the Future, Third Southeast Regional Conference on Technology, Atlanta, GA. April 1991

Meaningful, Significant, Responsible Consumer Involvement at Utah Assistive Technology Project - Staff and Volunteers, Salt Lake City, UT. November 1990

Funding Technology at RESNA's Technical Assistance Project Workshop on Funding, Washington D.C. March 1990

TELECOMMUNICATIONS:

Models for Success: Advancing the Goals of Section 255, with Jacquelyn Brand, Andrew Imparato, Susan Palmer, Paul Schroeder, Claude Stout, Jim Tobias, and Andrea Williams, at Alliance for Public Technology, Washington, DC., September 2000

Telecommunications and Advocacy: Playing Hardball with the Team. with Mary Lester and Russ Holland
at Alliance for Technology Access, Annual Institute, Nashville, TN. July 27, 1997

Technology and Persons with Disabilities Conference sponsored by the Center on Disabilities, California State University - Northridge, Los Angeles, California:

• Section 255, Telecommunications Act of 1996, 1997, 1998
• Will the National Information Infrastructure be Accessible? 1994
• Computer Bulletin Board Systems on Disability Information 1994

Using Computer Networks for Beginners and Seasoned Users: Getting Your Dime's Worth:

• Independent Living Technical Assistance Network, 1995: Portland, OR, July; Bethesda, MD, August; New Orleans, LA, September
• Leadership in Technology Management, CA, 1995: Oakland, May; Los Angeles, 1995; 1994: San Francisco, August and September; Los Angeles, July
• Cross-Disability Conference: United We Stand, Fargo, ND. September 1995
• California Assistive Technology Systems Steering Council, San Francisco, CA. June 1994
• National Council on Independent Living Annual Meeting, Washington, D.C. May 1991 & 1992; ILRU, Houston, TX. September 1992
• Board of Directors, Oakland, CA. March & October 1992
• California Foundation of Independent Living Centers, Berkeley and Anaheim, CA. May 1991
• Association of Independent Living Centers in New York, Albany. November 1991

• Independent Living and 21st Century, Oakland, CA. October 1991
• Association of Independent Living Centers In New York (AILCNY) Annual Conference, Albany, NY. November 1991

UNIVERSAL DESIGN:

Planning With Diverse Populations at American Planners' Association National Planning Conference, San Francisco, CA. April 1994

Designing for Independent Living: Issues from the Field at Center for Accessible Housing's Institute on Housing Accessibility Issues, Raleigh, NC. June 1991

Business Perspective: Developing Positive Customer and Employee Value at Association of Independent Living Centers In New York (AILCNY) Annual Conference, Albany, NY. November 1990

Advocating for Barrier Free Design:

• Region V Independent Living Conference Rochester, MN. October 1990
• Third Annual Japan-USA Conference on People with Disabilities, Yokohama, Japan. August 1989

Barrier Free Design: An Environment Everyone Can Use at City of Santa Monica, CA. November 1987

Disability Competency in the Health Professions - Spring 2002, Western University of Health Sciences, Pomona, CA - College of Allied Health Professions-Master of Science in Health Professions Education Program.

Online Courses: Introduction to Independent Living Philosophy - University of Northern Colorado and ILRU.

• 2/15-4/04/99
• 6/19-7/21/00
• 7/16-8/03/01
• 1/21-2/08/02

PROFESSIONAL ACTIVITIES

See Disaster and Emergency Activities

CALL TO ACTION SURGEON GENERAL'S CALL TO ACTION TO IMPROVE THE HEALTH,  January 2006 – present

Implementation work group to implement the goals and strategies contained in the and Wellness of Persons with Disabilities www.surgeongeneral.gov.

Builds on the 1991 IOM report Disability in America and the 1997 report Enabling America, the IOM committee reviewed progress and developments since the publication of those reports. The committee identified continuing gaps in disability science and proposes steps to strengthen the evidence base for public and private actions to reduce the impact of disability and related conditions on individuals and society in the United States.

RRECTECH: REHABILITATION ENGINEERING RESEARCH CENTER ON RECREATIONAL TECHNOLOGIES AND EXERCISE PHYSIOLOGY BENEFITING PEOPLE WITH DISABILITY NATIONAL ADVISORY PANEL. June 2003 - present

ATT's TELECOMMUNICATION CITIZENS ADVISORY PANEL - (formerly) SBC's (formerly - PACIFIC BELL'S)  - Chair, January 1999 - January 2000
April 1996 - December 2007

CARF - THE REHABILITATION ACCREDITATION COMMISSION - Board. April 1999 - December 2005

WORLD INSTITUTE ON DISABILITY - Board, August 2000 - December 2004

ALLIANCE TECHNOLOGY ACCESS - Board, March 1994 - March 2004

TECHNICAL EXPERT PANEL SUPPORTING THE RESEARCH TRIANGLE INSTITUTE (RTI) AND THE CENTERS FOR MEDICARE & MEDICAID SERVICES (CMS) efforts to develop quality indicators for inpatient rehabilitation facilities. January 2002 - November 2003.

MEDICAL REHABILITATION RESEARCH,  NATIONAL CENTER FOR MEDICAL REHABILITATON RESEARCH at the National    Institute of Health
Advisory Board November 1998  - June 2002

PACIFIC DISABILITY AND BUSINESS ACCOMMODATIONS CENTER - Advisory Board,  January 1992 - December 2002

PACIFIC BELL'S ADVISORY GROUP ON PEOPLE WITH DISABILITIES - Member, January 1993 - December 2000

DIMENET EDITORIAL COMMITTEE  - October 1994 - December 1997

NATIONAL COUNCIL ON DISABILITY  - Tech Watch Task Force Member, March 1995 - Present
Summit Participant,  April 1996
Advisory Committee,  November 1984 - December 1990

DEAF AND DISABLED TELECOMMUNICATIONS PROGRAM - Administrative Committee Member,  August 1995 - October 1997

ASSISTIVE TECHNOLOGY AND HOME MODIFICATION - Advisory Group for American Society on Aging,  January 1995 - December 1997

CITY OF SANTA MONICA BUILDING AND SAFETY COMMISSION  -Commissioner, Access Division , February 1994 - June 1996

ADAPTIVE ENVIRONMENTS - Board, November 1993 - October 1997

PUBLIC INTEREST CENTER ON LONG-TERM CARE - Board, December 1992 - August 1997

NATIONAL INSTITUTE ON DISABILITY REHABILITATION RESEARCH - Panel of Experts,  August 1991 - March 1992

NATIONAL TELECOMMUNICATIONS BLUE RIBBON PANEL - Member,  April 1991 - December 1994

RESEARCH AND TRAINING CENTER ON PUBLIC POLICY AND INDEPENDENT LIVING - Advisory Board,  October 1990 - December 1996

NATIONAL COUNCIL OF INDEPENDENT LIVING (NCIL)
Elected Offices:

• Board, March 1983 - May 1989
• Acting President 2/88 - 5/88
• Internal Vice President 5/87 - 2/88
• External Vice President 3/85 - 5/87
• Board member at Large 3/83 - 5/85

• Housing Advocacy 5/88 - 5/90
• Legislation and Advocacy 5/87 - 5/88
• Technical Assistance 5/86 - 5/88
• Standards and Evaluation 3/83 - 5/86

• Telecommunications Network 11/92 - 12/1996
• Fund Raising 5/87 - 12/89,
• Health 1/93 - 5/95, 1/98 - 12/98
• Rehabilitation Act 9/89 - 3/95
• National Conference 5/94 - 5/95, 9/97 -  9/99

• Technical Assistance and Planning 1/83 - 12/87
• Finance 1/85 - 1/86

CORO-CITY FOCUS PUBLIC AFFAIRS TRAINING PROGRAM  - September 1989 - June 1990

CALIFORNIA COMMISSION ON AGING - Long-term Care Committee, January 1985 - July 1993

RESEARCH AND TRAINING CENTER ON AGING - Advisory Board,  January 1990 - July 1993

CALIFORNIA DEPARTMENT OF AGING  -Long-term Care Committee, January 1990 - July 1993

REGION IX, REGIONAL REHABILITATION NETWORK  - Advisory Panel Member,  January 1985 - January 1987

OFFICE OF SPECIAL EDUCATION AND REHABILITATION SERVICES ADMINISTRATION - (OSERS) Independent Living Standards and Evaluation Advisory Committee,  January 1984 - January 1987

MEDIA ACCESS OFFICE  - July 1983 - December 1991
Media Awards Judge,  July 1983 - present
Advisory Council, Governor's Committee for the Employment of People with Disabilities, July 1983 - October 1986
Board Member October 1986 - February 1988

REGION IX FACILITIES TASK FORCE  - Member July,  1985 - December 1986

REHABILITATION RESEARCH AND TRAINING CENTERS
1. Aging with Disability, Rancho Los Amigos National Rehabilitation Center, Downey, CA
2. Independent Living Management, Buffalo, NY
3. Heath and Wellness, Oregon Health Sciences University, Portland OR
4. Managed Care, ILRU Houston, TX & National Rehabilitation Hospital, Washington Hospital, Washington, DC
5. Spinal Cord Injury, Rancho Los Amigos National Rehabilitation Center, Downey, CA


INDEPENDENT LIVING CENTERS & SERVICE ORGANIZATIONS

1. Adaptive Environments, Boston, MA
2. Advocacy Group, Saporro, Japan
3. Aids Project Los Angeles *
4. Arizona Independent Living Centers
5. Arthritis Foundation, Los Angeles, CA
6. Betty Clooney Center, Los Angeles, CA *
7. Birmingham Center for Independent Living, AL
8. California Women's Law Center, Los Angeles
9. Center for Nonprofit Management, Los Angeles, CA *
10. Center for Independent Living, Berekely, CA
11. Cleveland Housing Resource Center, OH
12. Central Illinois Center for Independent Living
13. Community Resources for Independent Living, Santa Rosa, CA
14. Craig Hospital, Denver, CO
15. Dayle McIntosh Center, Anaheim, CA *
16. Hawaii Center for Independent Living
17. Independent Living Resources, Pleasant Hill, CA
18. Independent Living Resources Center, Santa Barbara, CA
19. Lanterman Regional Center, Los Angeles, CA
20. Liberty Resources, Inc., Philadelphia, PA
21. Los Angeles Emergency Food and Shelter Program Local Board, CA *
22. Los Angeles Regional Family Planning Center, Los Angeles, CA *
23. Michigan Association For Centers For Independent Living
24. National Rehabilitation Hospital, Washington Hospital, Washington, DC
25. Northern Regional Center for Independent Living, Watertown, NY
26. Paraquad, St. Louis, MO
27. Prototypes, Culver City, CA *
28. Rose Resnick Lighthouse, San Francisco, CA
29. Resource Center for Independent Living, Utica, NY
30. Riverside Center for Independent Living, CA
31. Topeka Independent Living Resource Center, KS
32. UCPA, Prince George's & Montgomery Counties and Central Maryland
33. Utah Independent Living Center, Salt Lake City, UT
34. We're Able, Los Angeles, CA
35. Whole Person, Kansas City, KS
36. World Institute on Disability, Oakland, CA
37. Wyoming Independent Liiving Resources, Casper

 
GOVERNMENT AGENCIES
1. Alabama Department of Rehabilitation Services
2. California Commission on Aging
3. California Department of Aging
4. California Department of Rehabilitation *
5. Center Theatre Group, Mark Taper Forum/Ahmanson Theatre, Los Angeles, CA
6. City of Irvine, CA *
7. City of Santa Monica, CA *
8. Hyogo Prefectural Government, Assessment Project Team, Disaster Management Division, Office of the Governor, Committee for the Global Assessment of Earthquake Countermeasures, Five-year,Japan
9. Los Angeles County Transportation Commission, CA *
10. National Council on Disability *
11. National Institute of Disability Research and Rehabilitation
12. Office of Special Education and Rehabilitation Services
13. Phoenix Sky Harbor International Airport, AZ *
14. Santa Clara County Social Services Agency, CA
15. Santa Monica-Malibu Unified School District, CA *
16. Utah Department of Rehabilitation

 
NATIONAL ORGANIZATIONS
1. Alliance for Technology Access *
2. American Public Health Association, Washinton, DC
3. CARF, Tucson AZ
   
4. J.M. Foundation
5. National Council on Independent Living, Washinton, DC*
6. National Arts and Disability Center, UCLA, Los Angeles, CA*
7. National Center on Physical Activity and Disability, University of Illinois at Chicago, IL
8. NATIONAL FIRE PROTENTION ASSOCIATION - Center for High Risk Outreach, Boston, MA
9. RESNA, Washinton, DC
10. Robert Wood Johnson Foundation
11. United Cerebral Palsy Association, Washinton, DC

 
OTHER ORGANIZATIONS/BUSINESSES/COMPANIES
1. Administrative Services Cooperative, Los Angeles, CA
2. B.L. Bullard & Associates, Los Angeles, CA *
3. Business Association, Yokohama, Japan *
4. California Endowment, Los Angeles, CA
5. Hyogo Assistive Technology Research and Design Institute, Kobe, Japan
6. Independent Living Research Utilization (ILRU), Houston, TX *
7. J. Paul Getty Trust, Los Angeles, CA *
8. La Habra Children's Museum, La Habra, CA
9. Los Cerritos Shopping Mall, Cerritos, CA *
10. Mark Taper Forum, Los Angeles, CA
11. Pacific Bell, San Ramon, CA
12. Playa Vista, Los Angeles, CA *
13. Pacific Bell, CA
14. Rancho Los Amigos National Medical Center, Downey, CA
15. Siegel Diamond Architecture, Los Angeles, CA
16. -United Methodist Committee on Relief (UMCOR) Istanbul, Turkey
17. USAir / Corporate Services for the Deaf *
18. Shell Oil *
19. Southwestern Bell, INC

 
STATE ORGANIZATIONS
1. Arizona Independent Living Centers
2. Association of Independent Living Centers of New York
3. California Coalition of Independent Living *
4. California Commission on Aging
5. California Foundation of Independent Living Centers
6. California Specialized Training Institute (CSTI)
7. California Women's Law Center, Los Angeles *
8. Colorado Network of Independent Living Centers
9. Independent Living Association, Saporro, Japan
10. Kansas Association of Independent Living Centers (KACIL)
11. New Jersy Developmental Disabilities Council
12. Utah Assistive Technology Program
13. Utah Centers for Independent Living


UNIVERSITIES AND COLLEGES

1. Bosphorus University - Kandilli Observatory & Earthquake, Community Impact Project, Turkey
2. California State University at Los Angeles
3. California State University at Long Beach *
4. California State University at Northridge
5. Cornell University - Human Services Administration Program
6. Eastern Iowa Community College District
7. Iowa University Affiliated Project
8. Santa Monica College, CA *
9. University of California at Berkeley, School of Public Health, Center for Community Wellness
10. University of Kansas
11. University of Oregon
12. Western University's Center for Disability Issues and the Health Profession, Pomona, CA

INTERNATIONAL ORGANIZATIONS

1. World Bank
   

* INCLUDES AMERICANS DISABILTY ACT RELATED WORK

Cathleen Lyle Murray Award recognizes “outstanding individuals in non-medical professions 'on the basis of their impact on society through their humanitarian efforts to enhance the lives of persons with disabilities.” Awarded by The American Academy for Cerebral Palsy and Development Medicine at the 63rd Annual Meeting September 23-26, 2009.

Appreciation from the Los Angeles City Council for sharing extensive experience on disability policy that made the new Del Rey Lagoon Playground Equipment accessible to more families and children. Presented by Bill Rosendahl, Councilmember 11^th District, April 4, 2009

Outstanding contributions and advocacy on behalf of people with disabilities, National Association of Rehabilitation and Research Training Centers, April 25,2005.

Outstanding service and dedication 1995-2002, United States Access Board - 2003.

Honorary lifetime membership in The Association of Access Engineering Specialists for outstanding leadership and skillful contribution in the field of accessibility - 1999.

Westside Center for Independent Living's "Founders Award" for vision, leadership and advancing the rights and opportunities of people with disabilities - 1997.

Recognition from the California Department of Rehabilitation for participation in the development of a Strategic Plan for Assistive Technology for People with Disabilities - 1992.

Mary E. Switzer Scholar presented by the National Rehabilitation Association for excellence and accomplishments in service to people with disabilities - 1991.

Americans With Disabilities Act Award presented by the Task Force on the Rights and Empowerment for People with Disabilities for outstanding contributions to the enactment of the World's First Comprehensive Civil Rights Law for People with Disabilities - 1990.

Westside Center for Independent Living "Award" for excellence in the pursuit of a just and barrier-society - 1990.

Recognition from the California Legislature for dedicated service as Executive Director of the Westside Center for Independent Living - 1989.

Appreciation from the City of Los Angeles for 25 years of Community Action and exemplary efforts and accomplishments of great value to the community, presented by Gilbert Lindsey, Councilmember 9th District - 1989.

Westside Pilot International, Handicapped Professional Woman of the Year - 1988.

Weinberg Chai Award for enhancement of the quality of Jewish Life, by the Jewish Federation Council, Los Angeles for Co-chairing a very successful "Conference on the Concerns of Jews with Disabilities" - 1983.

Woman of the Year Award, presented by Santa Monica YWCA - 1982.

Distinguished Alumna Award, presented by the University of Southern California Graduate School of Social Work - 1980

• Human Participants Protection Education for Research Teams online course, sponsored by the National Institutes of Health (NIH) 03/30/2002
• Licensed Clinical Social Worker, California (LCS 5479)
• Certified Sex Educator and Therapist - American Association of Sex Educators, Counselors, and Therapists (ASSECT)
• Academy of Certified Social Workers (ACSW)

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 Created June 1997  |  Updated 02.3.10