June Isaacson Kailes, Disability Policy Consultant logo

6201 Ocean Front Walk, Suite 2
Playa del Rey, California 90293-7556
Phone 310-821-7080, Fax 310-827-0269
jik@pacbell.net, http://www.jik.com

RESUME
Updated 02/9/08   

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Employment
Education
Publications
Selected Workshops, Presentations and Courses
Professional Activities
Selected Client List
Awards
Licenses, Certificates, Appointments
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EMPLOYMENT

DISABILITY POLICY CONSULTING - Los Angeles, CA January 1985 to Present

Consults for and trains businesses, universities, state associations, government entities, centers for independent living and other not-for-profit organizations and has delivered hundreds of keynote addresses, workshops and seminars. Areas of consulting, writing and training include:

ASSOCIATE  DIRECTOR - Center for Disability Issues and the Health Professions, Western University of Health Sciences, Pomona, CA, November 2002 to Present

UNITED STATES ARCHITECTURAL AND TRANSPORTATION BARRIERS COMPLIANCE BOARD (ACCESS BOARD) -
Washington, DC., Presidential Appointment, Member, April 1995 - 2003

EXECUTIVE DIRECTOR, WESTSIDE CENTER FOR INDEPENDENT LIVING, INC. (WCIL) - Los Angeles, CA. January 1981 to July 1989 SERVICES DIRECTOR, WCIL - October 1978 to December 1980 PSYCHIATRIC SOCIAL WORKER II, OLIVE VIEW MEDICAL CENTER - Los Angeles County, CA. February 1977 to September 1978 MEDICAL SOCIAL WORKER, RANCHO LOS AMIGOS NATIONAL REHABILITATION CENTER - Downey, CA. July 1973 to February 1977
EDUCATION
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PUBLICATIONS

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ADVOCACY PUBLICATIONS

  1. Kailes, J. (1984). "Disabled Community Infuriated by ACLU's Stand on Bouvia." New World For Persons With Disabilities.
  2. Kailes, J. (1987). Activists: Old, Young and In Between Must Get Their Act Together! New World For Persons With Disabilities. 14(1-Part One); 14(2-Part Two).
  3. Kailes, J. (1987). "Developing New Disability Leadership." New World For Persons With Disabilities 13(11).
  4. Kailes, J. (1988). "Politics and Power." Mainstream 13(5).
  5. Kailes, J. (1988). Putting Advocacy Rhetoric Into Practice: The Role of the Independent Living Center. Houston, Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living and KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  6. Kailes, J. (1993). Advocacy: Reality or Rhetoric Inventory, Edition 11 - 9/99, Revised , 1995,1996, 1997,1999. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  7. Kailes, J. (1995). Beyond Oppression: Feeling the Movement and Its Power!, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  8. Kailes, J. (1997). The Ins & Outlines of Working With Elected Representatives, IL Net: NCIL/ILRU, 2323 S. Shepherd, Suite 1000, Houston, Tx  77019.
  9. Kailes, J. (1997, 1998). Building and Maintaining Relationships with Elected Officials, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  10. Kailes, J. (1999). Bridging the Great Divide Independent Living and Health Care: Systems Change Strategies and Resources--Learning from the Trenches., ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  11. Kailes, J., Birster, Alice (1987). "Title 24: Our Access to Civil Rights." New World For Persons With Disabilities 14(4).
  12. Kailes, J., Michaels, R. (1997). Taking Charge: Leadership and Systems Advocacy, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  13. Michaels, R., Kailes, J. (1996). Systems Advocacy: Beyond Rhetoric, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  14. Shreve, M., Kailes, J. (1990). "The Right to Die of the Right to Community Support?" Midwest Medical Ethics 6(2 & 3).
  15. Premo, B., Kailes, J., & Richards, C. (2001). A Framework for Disability Public Policy in the 21st Century: Informed Choice and Consumer Empowerment: Defining, Refining & Reforming Services, American Rehabilitation Association, Switzer Seminars and monograph series, http://www.mswitzer.org/sem01/papers/premo.html.
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ADA PUBLICATIONS

  1. Kailes, J. (1992). American With Disabilities Act: Questions and Answers on Employment, Dayle McIntosh Center, 13272 Garden Grove Boulevard, Garden Grove, CALIFORNIA  92843, (714) 621-3300, (714) 663-2087 TDD.
  2. Kailes, J. (1993). ADA Videos, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  3. Kailes, J. (1994). Americans With Disabilities Act Compliance Guide For Food And Shelter Programs, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net and The Los Angeles Emergency Food and Shelter Program Local Board.
  4. Kailes, J. (1994). Americans With Disabilities Act Compliance Guide For NonProfit Organizations, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
  5. Kailes, J. (2000). Ten years after the ADA, accessibility remains elusive, CARF Connection, 4891 East Ggrant Road, Tucson, AZ 85712, http://www.carf.org/Dec00-CARFConnection/Dec2000Contents.htm.
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DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES PUBLICATIONS

  1. Apodaca, M., Watson & Kailes, J (1985). "A Sociometric Comparison of Mainstreamed, Orthopedically Handicapped High School Students and Non-Handicapped Classmates." Psychology in the Schools 22: 95-101.
  2. Kailes, J. (1984). Language is More Than a Trivial Concern, Edition 9, Revised 1988, 1990, 1992, 1993, 1995, 1997, 1998, 1999. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  3. Kailes, J. (1986). Portraying People with disabilities: Guidelines for the Media and Entertainment Industry, in Options, Westside Center for Independent Living, 12901 Venice Boulevard, Los Angeles,CA 90066. 10.
  4. Kailes, J. (1987). Barrier Free Design: An Environment Everyone Can Use. Santa Monica Evening Outlook.
  5. Kailes, J. (1989). "Barrier Free Design Can Improve Your Profits in Multiple Ways." Worklife 2(3).
  6. Kailes, J. (1990). Barrier Free Design Benefits All, Not Just Disabled. Los Angeles Times: K17-K18.
  7. Kailes, J. (1990). Language Is More Than a Trivial Concern. Paralyzed Veterans of America Bulletin, Virginia Chapter.
  8. Kailes, J. (1991). Preferred Practices to Keep in Mind as You Meet People with Disabilities, Edition 2002, Revised: 1992, 1993, 1995, 1997, 1998, 2000, 2001, 2002. KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  9. Kailes, J. (1993). Accessibility Guidelines for Speakers, Editon III-July 2000, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  10. Kailes, J. (1993). Offering Access to Customers with Disabilities Expands Market Share, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  11. Kailes, J., Jones, D. (1993). A Guide to Planning Accessible Meetings, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net & ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  12. Kailes, J. (1997, 1998). Accessibility Checklist for Events and Meetings, Edition 1.1, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  13. Kailes, J. (2000). "The Language of Disability, Humanism in the Health Sciences." Western University of Health Services 4(1): 10-16.
  14. Kailes, J., Holland, R., Lester, M., Brown, S. (2001). Access Aware: Extending Your Reach to People with Disabilities, Alliance for Technology Access, 2175 E Francisco Blvd., Suite L, San Rafael, CA 9490, ATAinfo@ATAccess.org, 415.455.4575, TTY 415.455.0491 http://www.ataccess.org.
  15. Kailes, J. (2002). Who Are People With Disabilities and Activity Limitations?, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
  16. Morales, T., Holland, R., Lester, M., Kailes, J. (2002). Starting Points, Alliance for Technology Access, 2175 East Francisco Blvd., Suite L, San Rafael, CA  94901, Voice: 415-455-4575, TTY: 415-455-0491, ATAinfo@ATAccess.org, http://www.ATAccess.org.
  17. Kailes, J., Jones, D. (1993). A Guide to Planning Accessible Meetings, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net & ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
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DISASTER  PREPAREDNESS PUBLICATIONS

  1. Kailes, J. (1984). "Quake Safe - Part 1." New World For Persons With Disabilities.
  2. Kailes, J. (1985). Quake Safe - Part 2, New World For Persons With Disabilities, 2932 - 26th Street, Sacramento, CA  95818.
  3. Kailes, J. (1985). "Self-Reliance and Resourcefulness is Key to Being Quake Safe." Moving Forward.
  4. Kailes, J. (1985). "Self-Reliance and Resourcefulness: The Keys to being Quake Safe." Paraplegia News.
  5. Kailes, J. (1996). 12 Earthquake Tip Sheets for People with Disabilities including People with Visual, Hearing, Mobility, Cognitive, Psychiatric, Multiple Chemical Sensitivities, and Communication and Speech Related Disabilities as well as Tips for Service Animal and Pet Owners, Collecting Emergency Documents, Creating an Emergency Health Information Card, and Tips for People who Use Life Support Systems.
  6. Kailes, J. (1996). Living and Lasting on Shaky Ground: an Earthquake Preparedness Guide for People with Disabilities, California Office of Emergency Services and KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  7. Kailes, J. (2000). Creating a Disaster - Resistant Infrastructure for People at Risk Including People with Disabilities - Oldf= Title: Care for Those Most Vulnerable to Disaster: Tasks and Methods. The Grea Hanshim-Awaji Earthquake, Assessment Reports of the Global Assessment of Earthquake Countermeasures - People Most Vulnerable to Disaster, Volunteers, Hyogo Prefectural Government  Committe for Global Assessment of Countermeasures5-10-1 Shimoyamate-dori, Chuo-ku, Kobe, Hyogo 650-8567 Japan,Fax: +81-78-362-3910,  bousaikikakuka@go.phoenix.pref.hyogo.jp & KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net. 3: 129-145.
  8. Kailes, J. (2000). Creating A Disaster-Resistant Infrastructure for People at Risk Including People with Disabilities. Trauma Treatment Professionals' Training. A. Tufan, Duyan, Hacettepe University, School of Social Work, Series No: 005, Universitesi, Sosyal Hizmetler Yuksekokulu, Faith Caddesi No: 195 Ciftasfalt, 06290 Kecioren - ANKARA. 005.
  9. Kailes, J. (2002). Evacuation Preparedness: Taking Responsibility For Your Safety: A Guide For People With Disabilities and Other Activity Limitations, The Center for Disability Issues and the Health Profession, Western University of Health Sciences, Pomona, California, http://www.westernu.edu/cdihp.html.
  10. Kailes, J. (2002). Living and Lasting on Shaky Ground: an Earthquake Preparedness Guide for People with Disabilities, TURKISH VERSION - DEPREM ILE BIRLIKTE YASAMAK ENGELLILERDE DEPREME HAZIRLIK, B.U.K.R.D.A.E, A.H.E.P. , Beyaz Gemi Yayinlari , 2002, Istanbul , Cengelkoy 81220 Istanbul tel: 0216.308 05 11 / 345 ,  faks: 0216.332 90 94, iahep@boun.edu.tr  || www.iahep.org.
  11. Kailes, J. (2004). Emergency Health Information: Savvy Health Care Consumer Series, 2004. Published and distributed by Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone: (909) 469‑5380, TTY (909) 469-5520, www.cdihp.org.
  12. National Council on Disability. (2005).  Saving Lives: Including People with Disabilities in Emergency Planning (researched and drafted under contract for NCD).
  13. Kailes, J. (2005). Why and How to Include People with Disabilities in Your Emergency Planning Process? Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556.
  14. Kailes, J. (2005). Disaster Services and “Special Needs:” Term of Art or Meaningless Term? Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556. 
  15. Kailes, J. I. (2005). Disaster Services and "Special Needs" - Term of Art or Meaningless Term? International Association of Emergency Managers Bulletin, Special Focus Issue: Emergency Preparedness for Individuals With Disabilities, Part 2, April, 2005. 22.
  16. National Organization on Disability, (2005). Report on Special Needs Assessment for Katrina Evacuees (SNAKE) Project910 Sixteenth Street, N.W., Suite 600 \ Washington, DC 20006. (led Analytical / Writing team). 
  17. Kailes, J. 2006. Serving and Protecting All by Applying Lessons Learned - Including People with Disabilities and Seniors in Disaster Services, Center for Disability Issues and the Health Professions at Western University of Health Sciences, Pomona, California, and California Foundation for Independent Living Centers, jik@pacbell.net. Retrieved  05/2/06
  18. Kailes, J. (2006). Emergency Preparedness: Taking Responsibility For Your Safety - Tips for People with Activity Limitations and Disabilities. (written for the Los Angeles, County, Office of Emergency Management, Emergency Survival Program).
  19. Kailes, J., Enders, A., (2007) Moving Beyond "Special Needs" A function-based framework for emergency management and planning. JDPS, 2007. 17: p. 230-237.
  20. Kailes,J. (Spring/Summer 2007), Serving and Protecting: The Role of Disability and Aging Organizations in Disaster Planning, Impact, Feature Issue on Disaster Preparedness and People with Disabilities, Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 20 • Number 1
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HEALTH, WELLNESS AND AGING WITH DISABILITY PUBLICATIONS

  1. Bullock, K., Taylor (1981). Guidelines for Discussion of Videotape: Reflections on Adolescence (Instructor's Manual). Los Angeles, Orthopaedic Hospital.
  2. Kailes, J. (1981). Sexuality and Disability and The Social, Political & Economic World of Disability, Wright Institute of Los Angeles.
  3. Kailes, J. (1982). Personal and Family Counseling. A Handbook of Services for the Handicapped. J. Kailes, Katz, A., Martin, K., Greenwood Press.
  4. Kailes, J. (1989). "Aging With A Disability: Another Advocacy Priority." Options 3(1).
  5. Kailes, J. (1990). Aging With A Disability: Another Advocacy Priority. Networker, Uniited Cerbral Palsy Association. 3.
  6. Kailes, J. (1991). Aging With A Disability: Another Advocacy Priority. Aging, Disability and the Nation's Productivity, Switzer Monograph, National Rehabilitation Association.
  7. Kailes, J. (1992). "Aging With A Disability: Educating Myself." Generations, Journal of the American Society on Aging XVI(1).
  8. Kailes, J. (1992). Aging With A Disability: Educating Myself. Aging and Disabilities: Seeking Common Ground, Editors. A. Eustis, Baywood Publishing Company, Inc. Amityville, New York.
  9. Kailes, J. (1995). "Fit to be Tried." Mainstream 19(9): 37-46.
  10. Kailes, J. (1995, 1997, 1998, 2000). Health, Wellness and Aging with Disability, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  11. Kailes, J. (1995). "Midlife Cripdom: Getting Fewer Miles per Gallon?" The Disability Rag 16(4).
  12. Kailes, J. (1995, 1996, 2002). Resource List: Wellness, Self-Care, Exercise & Aging with Disability, Edition V-12/02, http://www.westernu.edu/cdihp/resourceindex.htm.
  13. Kailes, J. (1996, 1997, 1998, 2001, 2002). Be a Savvy Health Care Consumer Your Life May Depend on It!, Edition 5, 1st Edition 1997, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  14. Kailes, J. (1998). Managing Your Own Health Care - You've got to be a Savvy Consumer to Make Sure Your Needs are Met. MAINSTREAM. 22: 31-34.
  15. Kailes, J. (1999). Bridging the Great Divide Independent Living and Health Care: Systems Change Strategies and Resources--Learning from the Trenches., ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  16. Kailes, J. (2000). Can Disability, Chronic Conditions, Health and Wellness Coexist?, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net., http://www.ncpad.org/wellness/fact_sheet.php?sheet=106
  17. Kailes, J. (2000). Resource List: Wellness, Self-Care, Exercise & Aging with Disability, Edition V, http://www.westernu.edu/cdihp/resourceindex.htm.
  18. Kailes, J. (2001). Aging with Disability - Good News and Bad News. Western U-View. XX: 17.
  19. Kailes, J. (2001). Health Care Providers And Health Care Consumers:The Complaint Gap, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  20. Kailes, J. (2001). Health and Wellness for Women With Disabilities. Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel Hill, NC  27599-8185.
  21. Kailes, J. (2001). Making the Most of Your 15 Minutes. Orchid. Summer Edition, NCODH, CB#8185, UNC-CH, Chapel Hill, NC  27599-8185: 54.
  22. Kailes, J. (2002). Are you an active partner in your health care? The IEHP Pulse, Member Newsletter, 303 E. Vanderbilt Way, Suite 400, San Bernardino, CA 92408. 13: 8.
  23. Kailes, J., Delgado, H. (1974). "Sex Counseling for Those with Spinal Cord Injuries." Social Casework 55(10): 622-627.
  24. Kailes, J., Richards, L, Heinsohn, D, Lin, R., Shepard, R (1999). Teleconference: Bridging the Great Divide - Independent Living and Health Care: Individual Services, Advocacy and Resources. Houston, IL Net: NCIL/ILRU, 2323 S. Shepherd, Suite 1000, Houston, TX 77019.
  25. Premo, B., Kailes, J., Schwier, E., Richards, C., (2003). Adults with Disabilities in Medi-Cal: The Beneficiary Perspective, Medi-Cal Policy Institute, 476 Ninth Street, Oakland, CA 94607, Tel: 510.286.8976, Fax: 510.238.1382, http://www.medi-cal.org/topics/view.cfm?itemID=21512.
  26. Kailes, J., Shimomura, S., McGory, R., Premo, B. (2003). Pharmacy Times, Communicating with Your Deaf and Hard-of-Hearing Patients, September 2003, http://www.pharmacytimes.com.
  27. Story, MF, Winters, JMW, Premo, B, Kailes, JI, Winters, JM (2003). Understanding Barriers to Healthcare Caused by Inaccessible Medical Instrumentation. In Proceedings of RESNA 2003 International Conference. Arlington, VA: RESNA Press.
  28. Kailes, J. Emergency Health Information: Savvy Health Care Consumer Series, 2004. Published and distributed by Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Phone: (909) 469‑5380, TTY (909) 469-5520, Fax: (909) 469‑5407, www.cdihp.org.
  29. Kailes, J., The Health Care Partnership: Barriers to Care- Part 2: The Consumer's Viewpoint, in: Kemp, B., Mosqueda, L., Ed. (2004). Aging with a Disability: What the Clinician Needs to Know, John Hopkins University Press.
  30. Winters, JMW, Story, MF, Barnekow, K, Premo, B, Kailes, JI, Schwier, E, Winters, JM (2004). A Delphi Study to Develop a National Survey of Accessibility of Medical Instrumentation. In Proceedings of RESNA 2004 International Conference. Arlington, VA: RESNA Press.
  31. Winters, JMW, Story, MF, Barnekow, K, Premo, B, Kailes, JI, Schwier, E, Winters, JM (2004). A National Survey of Accessibility of Medical Instrumentation. In Proceedings of RESNA 2004 International Conference. Arlington, VA: RESNA Press.
  32. Kailes, J., and Mac Donald, C., ADA Resources, 2004. Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu.
  33. Kailes, J., and Mac Donald, C., Importance of Accessible Weight Scales, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu .
  34. Kailes, J., and Mac Donald, C., Choosing & Negotiating an Accessible Business Location, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products, Email ahcs@westernu.edu . 
  35. Kailes, J., and Mac Donald, C., Health Care Facilities Access, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  36. Kailes, J., and Mac Donald, C., Importance of Accessible Examination Equipment, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products) Email: ahcs@westernu.edu .
  37. Kailes, J., and Mac Donald, C., Improving Accessibility with Limited Resources  2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, Fax 909.469.5503, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  38. Kailes, J., and Mac Donald, C., Tax Incentives for Improving Accessibility, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, Voice-909.469.5213/TTY-909.469.5520, available at www.cdihp.org/products, Email: ahcs@westernu.edu .
  39. Kailes, J., and Mac Donald, C., Tools for Decreasing Health Care Barriers, 2004. Published and distributed by the Center for Disability Issues and the Health Profession, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854, voice/TTY (800) 832-0524, available at www.cdihp.org/products.html, Email: ahcs@westernu.edu .
  40. Schwier, E., Kailes, J., Jansma, M., Premo, P. and Mac Donald, C., The Experiences and Perspectives of Medi-Cal Consumers with Disabilities, August 2004, Inland Empire Health Plan, http://ww2.iehp.org/NR/rdonlyres/CA369D24-53B0-41B8-BB58-C645908B5BBB/0/CDIHPreport.pdf
  41. Kailes, J. Shield Your Health: Making Preventive Health Care Work for You – A Resource Kit for People with Physical Disabilities, 2005. Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854; voice/TTY 1-800-832-0524; e-mail ahcs@westernu.edu.
  42. Center for Disabilities Issues & the Health Professions,  Center for Health Care Strategies, and The Lewin Group, (2005) Developing Health Plan Performance Standards for Serving People with Disabilities in Medi-Cal, www.chcf.org.
  43. Kailes, J. (2005). Workshop on Disability in America, an New Look: summary and papers: based on a workshop of the Committee on Disability in America: a New Look, Board on Health Sciences Policy, Field, M., Jette, J.M., and  Martin, L. editors,  Chapter K - A User's Perspective on Midlife (Ages 18-65) Aging with Disability, Institute of Medicine.
  44. Palsbo, S., Kailes, J. (2006). "Disability-Competent Health System." Disability Studies Quarterly 26(2)..
  45. Kailes, J.I. (2006). The Patient’s Perspective on Access to Medical Equipment. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibility and Usability Considerations (pp. 3-14). Boca Raton, FL: CRC Press.
  46. Winters, J.M.W., Story, M.F., Barnekow, K., Kailes, J.I., Premo, B, & Schwier, E. (2006). Results of a National Survey on Accessibility of Medical Instrumentation for Consumers. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibilty and Usability Considerations (pp. 15-32). Boca Raton, FL: CRC Press.
  47. Kailes, J.I., Premo, B., & Richards, C. (2006). Toward a New Health Care Policy: Accessible Medical Equipment and Instrumentation. In J. Winters and M. Story (Ed.), Medical Instrumentation: Accessibility and Usability Considerations (pp. 49-70). Boca Raton, FL: CRC Press.
  48. Kailes, J.I., (2006).  Making Preventive Health Care Work for You – A Resource Guide for People with Physical Disabilities, Published and distributed by the Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766‑1854; voice/TTY 1-800-832-0524; e-mail ahcs@westernu.edu, www.CDIHP.org
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INDEPENDENT LIVING PUBLICATIONS

  1. Brown, S., Gonzalez, L. Kailes, J. (1997). For the Crime of Being Different:  Exploring Disability Rights, History, Philosophy, and Culture, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  2. Kailes, J. (1985). "Independent Living Centers." Long-Term Care Reporter 1(3).
  3. Kailes, J. (1985). People with Disabilities and the Independent Living Model. Case Management in Human Service Practice. M. Weil, Karls, J, Jossey-Bass.
  4. Kailes, J., Roy, K., Elias, G. (1991). The Reauthorization of The Rehabilitation Act, A report to the President and to Congress of the United States, National council on Disability, 1331 F St., NW, Suite 850  Washington, DC 2000, Voice: (202) 272-2004, TTY: (202) 272-2074: 58.
  5. Kailes, J. (1993). Disability Pride: The Interrelationship of Self-Worth, Self-Empowerment, and Disability Pride. Houston, Independent Living Research Utilization (ILRU) Research and Training Center on Independent Living.
  6. Kailes, J. (1997). Centers for Independent Living, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  7. Kailes, J. (1997). Independent Living Philosophy and Practice (Two cassette tapes), KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  8. Kailes, J. (1997). Independent Living: Reality or Rhetoric Inventory, KAILES - Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293, http://www.jik.com/resource.html, jik@pacbell.net.
  9. Kailes, J. (1997). So You Are Thinking of Launching a Web Site--Is It Worth the Investment?, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  10. Kailes, J., Shreve, M (1993). Training for ADA Trainers and Consultants, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
  11. Kailes, J., Shreve, M. (1993). Marketing Your Center's ADA Services - Two Training Workshops. Long Beach, Kailes-Publications, 6201 Ocean Front Walk, Suite 2, Playa del Rey, California 90293-7556, http://www.jik.com/resource.html, jik@pacbell.net.
  12. Michaels, R., Kailes, J. (1994). Independent Living and the Rehab Act, ILRU Houston, TX, http://www.ilru.org/ilnet/ilnetbks.html.
  13. Michaels, R., Kailes, J., McDonald, G., Spooner, P., Jordan, H., Sykes, R., Richards, L., Dresden, C., Heinsohn, D., Kemp-Moye, D., Martinez, M., Smith, Q., and Hughey, A.M. (1995). Standards & More: Beyond Compliance--Addressing Independent Living Needs of Today & Tomorrow.
  14. Michaels, R., Kailes, J., Shreve, M., Richards, L., Dresden, C., Heinsohn, D., Smith, Q., Telsford, D., and Hughey, A. M. (1994). Standards & More: Beyond Compliance.
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SELECTED WORKSHOPS, PRESENTATIONS AND COURSES

ADVOCACY:

Millenium Mission: Getting the Biggest Bang for That Buck! at Alliance for Technology Access Institute,Orlando, Florida, October 1999
ILNet National Teleconferences:

The Ins and Outs of Visiting the Hill at NCIL Annual Conference, Washington, DC, June 1997

TAKING CHARGE, MAKING CHANGE, GETTING INVOLVED: Leadership and Systems Advocacy:

Systems Advocacy: Beyond Rhetoric at Vincennes, IN. September 1966

Standards and More: Beyond Compliance at Independent Living Technical Assistance Network, 1995: Portland, OR, July; Bethesda, MD, August; New Orleans, LA, September

Oppression at Pennsylvania Statewide Conference on Independent Living, Harrisburg, PA. October 1995

Self Advocacy and Disability Pride:

Advocacy: ATA and Current Legislative Developments - How ATA can Initiate and Participate in Advocacy Efforts at Alliance for Technology Access Institute, French Lick, IN. August 1995

Squeaky Wheel Gets Greased...Getting Involved and Taking Charge at Aging and Long Term Care Network Conference, Santa Barbara County, CA. October 1994

Advocacy Skill Building Workshops:

Association of Independent Living Centers In New York (AILCNY) Annual Conference, Albany, NY: Leadership Development at Cornell University, Human Services Administration Program, (series of three-day regional workshops): Leadership Development: Mentoring A Model for Success at United Cerebral Palsy Association Teleconference, October 1991

Getting Beyound Curb Cuts at Third Southeastern "Touch the Future Conferencec, Atlanta, GA. April 1991

Putting Muscle in Independent Living Center Advocacy Efforts at Keynote Speaker at Region V Independent Living Conference, Rochester, MN. October 1990

Advocacy and Independent Living Centers - We Got Trouble in River City! at Keynote Speaker at Colorado Statewide Conference on Independent Living, Greeley, CO. September 1989

Getting Involved in Disability Issues at National Lawyers Guild Conference, Los Angeles, CA. June 1989

Legislative Update on Housing at NCIL's Sixth Annual Conference on Independent Living, Washington, D.C. May 1988

Developing New Grass Roots Leadership at NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

Public Policy Issues Affecting Independent Living at National Council on Disability, San Francisco, CA. April 1985

Elizabeth Bouvia and ACLU, as Seen by the Disabled Community at St. John's Hospital Ethics Committee, Santa Monica, CA. March 1984

Los Angeles' Minority Majority: Crystallizing a Public Relations Partnership at Public Relations Society of America, Los Angeles, CA. April 1983

Homeless Crisis For People With Disabilities at City of Santa Monica, CA. January 1983

Emergence of People With Disabilities in the Media at Annenberg School of Communications, University of Southern California (USC), Los Angeles, CA. December 1981

Who Defines Disability? at Daniel Freeman Hospital Comprehensive Resource Center, Inglewood, CA. July 1981

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AMERICANS WITH DISABILITIES ACT (ADA) OF 1990:

What Makes a Meeting Accessible? Great Lakes ADA and Accessible IT Center, Audio Conference Series, August, 2004

ADA Requirements For Organizations: Ten Years after the ADA Lessons, Dilemmas, and Opportunities, with Jim McBain Henry Moss, Laura Solano, and George Terrien, at Build Boston, MA., November 2000

Complex Issues in Implementing the ADA: Planning Barrier Free Meetings, at California State University, Statewide Disabled Employment Program, Los Angeles, CA, October 1997

Customer Issues and Disability Diversity at Shell Oil, San Francisco, CA, September 1997

ADA Implementation in Public Schools
1995: Providence, RI and Middleton, CN. April; Denver, CO. June; Atlanta, GA. July; Oakland, CA and Chicago, IL. August

Evaluating for Compliance: Tips for Getting It Done, Title II

Toward Access and Opportunity: A VIP Workshop on Title I of the ADA at California State University, Long Beach, 1995: January; 1994: November, October, April

ADA Accessibility Training for LA Regional Family Planning Clinics
California 1994: Los Angeles, March (4 trainings); San Diego, July; Oakland, October

Update of the ADA at Center for Nonprofit Management Executive Round Table, Los Angeles, CA. October 1993

Implementing ADA at USAir, Dayton, OH. October 1993

ADA's Employment Provisions for Classified Managers at Santa Monica College, CA. June 1993

Marketing Your Center's ADA Services at California Foundation of Independent Living Centers, Sacramento and Newport Beach. January and September 1993

Technical Assistance for Employers at The California Governor's Committee for Employment of People with Disabilities, Anaheim, CA. October 1992

How ADA Can Work for You: A New Form of Advocacy Power Assist at Arthritis Foundation, Los Angeles, CA. September 1992

Training for ADA Trainers and Consultants at California Foundation of Independent Living Centers, Los Angeles and Berkeley, CA. March 1992

Barrier Free Meetings: Keeping Up with a Moving Target at Association of Independent Living Centers in New York, Albany. November 1992

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DISABILITY DIVERSITY, DISABILITY COMPETENCY, WELCOMING PEOPLE WITH DISABILITIES:

Customer Services for People with Disabilities at American Public Health Association & Boston Convention and Vistor Service Bureau, MA. November 2000

Welcoming Visitors with Disabilities:

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DISASTER PREPAREDNESS:

Working Emergency Planning & Preparedness Forum: Including People with Disabilities & Activity Limitations. Sponsored by City of San Diego Disability Services Program, Area Board XIII on Developmental Disabilities and Access to Independence, 1/23/08

<>California Foundation for Independent Living Centers Access to Readiness Summit "Increasing Disability Preparedness Together" Functional Assessment Service Teams (FAST) - Southern California  Wildfires Response with Vicki Cuscino, Richard Devylder, Helen Lopez, Andy Mudryk, Shannon McCrosky, Christie Rudder, Martin Sweeny, Sacrament, California 1/11/08

“Disaster Lights” & “Disaster Heavies:” Relevant Emergency Preparedness Information for People with Disabilities [ILRU Webcast 2 Parts], Part 1- 11/9 & Part 2 - 11/16/07.

Avoiding Killer Curbs By Building In Electronic Curb Cuts From The Beginning (Understanding the importance of electronic personal health records  for persons with disabilities in accessing needed health care services.)
Are You Really Ready? Plan Now or Suffer & Muddle Through Later! Your Role in Disaster Planning, Preparedness, Response, & Recovery

Infusing Disability Literacy & Competency in Emergency Planning

Applying Disaster Lessons Documented & Moving Beyond Special Needs

Making Lessons Documented - Real !

Policy Issues - Emergency Preparedness for People with Disabilities, California Foundation of Independent Living Centers, Sacramento, 2/27/06.

Plan Now or Suffer & Muddle Through Later! The Role of Disability Community Based Organizations in Disaster Planning, Preparedness, Response, Recovery & Mitigation Activities

Emergency Preparedness for People with Disabilities

In the Aftermath of Katrina, with Lex Frieden, Michael Winter, Thomas Kelley, Glen White, John Lancaster, June Kailes, and Gary Maddox, Association of Programs Rural Independent Living, Honolulu, HI, 10/8/05.

Emergency Preparedness for People with Disabilities, sponsored by National Organization on Disability, U.S. Department of Homeland Security &  National Capitol Region,
September 22-25, 2004.

Emergency Evacuation for People with Disabilities

Emergency Preparedness for People with Disabilities, An Interagency Seminar of Exchange for Federal Managers, U.S. Department of Labor, Washington DC, December 2003

Disaster Preparedness and Emergency Response: Independent Living Experience and Future Direction at NCIL Annual Conference, Washington, DC June 2003 with Elizabeth Davis and Jennifer Rowland

Emergency and Disaster Preparation for People with Disabilities on a Webcasts May 2003, archived at
http://www.ilru.org/ku-ilru/online/Webcast.html

Hurricanes, Floods and Quakes - ILCs Responsibilities in Disaster Preparedness and Response at
NCIL Conference, Washington, DC. June 1997

Learning from Living and Lasting on Shaky Ground: Earthquake Preparedness for People with Disabilities

Turkey, February 2001 Kobe, Japan People With Disabilities and Disasters: A Civil Emergency Management Course at California Specialized Training Institute (CSTI), Los Angeles, CA, February 1983 & San Francisco, March 1984

Attitudes Towards People With Disabilities at California State University, Long Beach, CA. November 1983

Emergency Management For People With Disabilities at City of Santa Monica, CA. June 1983

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FUND RAISING:

Expanding Funding Resources and Organizational Change at Auburn University Program for Training and Development, Atlanta, GA. April 1992

Fund Raising / Development at Cornell University, Human Services Administration Program -series of two-day regional workshops:

Raising Money and Consciousness: Maintaining the Independent Living Philosophy Throughout the Development Process  at Association of Independent Living Centers In New York (AILCNY) Annual Conference, Albany, NY. November 1990

Fund Raising and Advocacy: Coexistence Without Conflict at NCIL's Annual Conference on Independent Living, Bethesda, MD, May: 1988 & 1989

Successful Fund Raising Strategies for Independent Living Centers at NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

Foundation and Corporate Giving: From the Recipient's Perspective at Southern California Philanthropy Association, Los Angeles, CA. May 1985

Fund Raising Strategies for Independent Living Centers at Beyond Survival, A Conference on Independent Living, Denver, CO. August 1983

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HEALTH, WELLNESS AND AGING WITH DISABILITY:

Accessible Medical Equipment Survey Process,
Sutter Health - California 10/11/07.   <>

Reflections On Taking Charge – Consumer Empowerment
, Long Term Care Coalition San Diego, CA 9/12/07.

Accessibility of Medical Equipment, Festival of International Conferences on Caregiving, Disability, Aging and Technology, Toronto, Canada. 6/18/07.

E-Health – Cool Tools or More Barriers for People with Disabilities and Activity Limitations, Pacific Edge E-Health Innovations: Linking Research, Practice and Policy to Benefit Consumers & Communities, Kay Center – CGU Symposium, Pamona, California, 12/1-2/06.

Development of a Preventive Services Guide for Adults with Physical Disabilities Using Participatory Action Research,  American Public Health Association, 134th Annual Meeting Boston, MA. 11/6/06.

Quality Services for People with Disabilities & Activity Limitations

Strategies for Aging - What’s Worked?

People with Disabilities: Awareness & Business Implications, L.A. Care, Los Angeles, California, 1/19-20/06

Accessibility Revisited: Policy-to-Practice, CARF’s Business Practice Standards and “Hot Topics” Workshop Scottsdale, Arizona, December 5, 2005 & December 8, 2003.

Understanding Accessibility Elements of Facility Site Reviews

Developing Elements of Disability Literacy and Competency in Health Care Practice,L.A. Care, Los Angeles California, 9/6/05.

Barriers to Effective Health Care for People with Disabilities, California Medical Board, Los Angeles, California, with Brenda Premo, 2/17/05.

Should We Mop The Floor, Or Fix The Roof?  Public Policy and Health Research: What is our role
? Occupational Therapy Association of California, 28th Annual Conference, Pasadena, CA, with Brenda Premo, Erin Schwier & Brandi Buchanan, 11/6/04 .

Just Hop Up, Look Here, Listen Up, Stay Still and Hold Your Breath!  Access to Medical Equipment - Where are We?

How To Keep Running When There are No Trade-ins & Few Replacement Parts!  Partners on Wellness: Working Together to Promote Equality in Health Care for Women with Disabilities - Women with Disabilities Health Care Task Force, NJ Council on Developmental Disabilities, Statewide Conference, Princeton, NJ, May 2004.

Making Managed Care Work For People With Disabilities,

Developing Elements of Disability Competency in Health Care Practice: Policy-to-Practice, Kaiser Permanente California Regional Offices, Pasadena and Oakland, California, 2003: July - August, February 2004.

Developing Elements of Disability Competency in Health Care Practice, Inland Empire Health Plan, San Bernardino, California, January 2004.

Can Health and Disability Coexist? Select Summit on Disability and Health: A Call to Action, Des Moines, IA, November 2003.

Disability Issues and Manages Care,
RESPECTABILITY, Disability Action & Advocacy Conference: Future of Disability Movement, Los Angeles, CA, October 2003.

Developing a Communications Plan to Promote Osteoporosis Awareness -- Reaching the Harder to Reach Populations,
National Osteoporosis Awareness Project, Oakland, CA. September 2003 with:


Identifying Future Directions for Health and Wellness for Persons with Disabilities
at NCIL Annual Conference, Washington, DC. June 2003 with Tom Seekins, Ph.D., and Glen W. White, Ph.D.


Helping People with Disabilities Take Charge of Their Health Care
at:
The Intersection of Aging and Disability: Implications for Funders at Grantmakers In Aging Annual Conference, The Changing Face of America: Aging Realities in the 21st , October 2002,  with Jeanne Argoff, Ph.D., Laura Mosqueda, M.D.

Prventive Health Screenings for Woman with Disabilities at NCIL Conference, Washington, D.C. June 2002, with  Ann Musser D.O. and LeeAnne Carrothers PT, Ph.D.

Disability Forum, Healthy People 2010: Disability And Secondary Conditions at American Public Health Association (APHA) meetings. Atlanta, GA. October 2001

Disability & Health: Action Plans & Strategies for Keeping Our Bodies Out of the Shop at Women with Disabilities: Health Care Summit Strategies for Change, Iselin, New Jersey, Sponsored by NJ Developmental Disability Council, June 16, 2001

Bridging the Complaint Gap: Consumer - Provider Partnershipat Living with Disability: New Treatment Approaches for the Practioner, Cosponsored by Rehabilitation Institute of Chicago and Rehabilitation Research and Training Centers on Aging with Disability and Aging with Spinal Cord Injury, Chicago, Illinois. April 2001

Disability & Health  a System Advocacy Agenda or Keeping Your Body out of the Shop at Disability & Health: a Wellness Agenda Conference Sponsored by Centers for Disease Control and Prevention and Michigan Association of Centers for Independent Living, Dearborn, Michigan. May 2000

Health, Wellness and Aging with Disability at:

American Society on Aging Annual Meeting, San Diego, CA, March 2000 NCIL Conference, Washington, D.C. June 1999 Consumer health-plan decision making and health-plan accountability with Robyn Stone, Charlotte Ducan, Bob Kafka, Gina McDonald, Bobby Silverstein, Peter Thomas at Empowerment in Managed Health Care: People with Disabilities in a Changing Health Care Environment, Houston, TX, March 1998

First International Conference on Aging with Disability Living with Disability: Exploring The Aging Process, San Diego, California, February 1998

Spinal Bifida Association of America, Annual Conference, Louisville, KY. June 1997 NCIL Conference, Washington, D.C. June 1997 The Savvy Health Care Consumer, Your Life May Depend on It! Our Future is Now! A Personal Perspective on Health at Aging and Cerebral Palsy: A Vision for the Future. Toronto, Canada. May 1996

Disability and Aging at University of California, Los Angeles. July 1996, February 1990

ARISE, Inc. 17th Annual Conference and Trade Show. Syracuse, NY. March 1996

Aging and Disability: Bridging the Gap! at Pennsylvania Statewide Conference on Independent Living, Harrisburg, PA. October 1995

Conversation on Disability Issues 2: Secondary Conditions and Aging with a Disability, Syracuse, NY. September 1995:

Mid-Life Cripdom: Getting Fewer Miles per Gallon: Developing a Health Promotion Advocacy Agenda and Strategies at National Conference on Independent Living 1995 Conference and Annual Meeting, Bethesda, MD. May 1995

American Society on Aging Annual Meeting The Age Games, Who Plays? Who Wins? Atlanta, GA. March 1995:

Turning 35 and Sometimes Feeling like 65! Aging with Disability - Where are we and what do we know?
Association of Independent Living Centers in New York Independent Living - Equal Opportunity: Fact or Fiction?, Albany, NY. November 1994

American Academy of Physical Medicine and Rehabilitation, Anaheim, CA. October 1994:

Turning 35, Feeling Like 65 - What's Happening with Aging With Disability? at National Council on Independent Living Annual Meeting, Bethesda, MD. April 1994

Meeting the Challenges of Aging with Disability:

American Society on Aging, April 1990: Staying on Course, Aging With Disability at National Council on Disability's Conference for Families of People with Disabilities, Disability, A Family Affair, San Diego, CA. August 1989

The Economics of Effective Rehabilitation From the Consumer's Perspective and Implications of Disability Issues on Hospitals  at American Hospital Association's Rehabilitation Division Conference, Los Angeles, CA. November 1987

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INDEPENDENT LIVING:

Online Courses: Introduction to Independent Living Philosophy, 2/15-4/4/99, 6/19-7/21/01, 1/21-2/8/02, 3/22-4/9/04, ILRU, University of Northern Colorado, and Utah State University .

Millenium Mission: Getting the Biggest Bang for That Buck! at ILNet Leadership Training, Houston, TX. November 1999

A Renewal of Spirit: Back to Our Roots (Getting on the Same Page) at Anchorage, Alaska, October 1997

The Evolution of Independent Living at Abilities Exposition, Anaheim, CA. May 1997

IL Philosophy Training: What's Cutting Edge? What's Working? at NCIL Conference, Washington, D.C. June 1997

A Renewal of Spirit, Back to Our Roots, Getting on the Same Page, Independent Living Philosophy and Practice

Increasing Effectiveness of a Board of Directors at Alliance for Technology Access Institute, French Lick, IN. July 1995

Improving Service Systems for People with Disabilities: Findings from a Four-Year RWJF Demonstration in Eleven Sites at Society for Disability Studies, Oakland, CA. June 1995

Independent Living and The Rehabilitation Act, 1994: Atlanta, GA - February; Albany, NY - May; Bethesda, MA - June; Chicago, IL & Portland, OR - July; Los Angeles, CA - September

Philosophy Forum:

Disabilities in the Workplace at Keynote address at Aspirations for Tomorrow presented by ARISE, Inc., Syracuse, NY. March 1990

Options for Living Independently at Keynote Speaker at Independent Living and Peer Counseling Conference, Saporro, Japan. August 1989

Overview: Independent Living Centers in the USA at Third Annual Japan-USA Conference on People with Disabilities, Yokohama, Japan. August 1989

A Comprehensive Look at Independent Living Centers' Evaluation and Standards, Past and Future at
NCIL's Third Annual Conference on Independent Living, Kansas City, KS. June 1985

The Use of Computers in Independent Living Centers at Regional Rehabilitation Network Conference, Los Angeles, CA. February 1985

The Role of the Social Worker in an Independent Living Center at Beyond Survival, A Conference on Independent Living, Denver, CO. August 1983

The Fut