June Isaacson Kailes, Disability Policy Consultant logo

Advocacy Links and Resources

Updated  07/26/04

Political Activision

 Government

Additional Resources

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Disability specific advocacy, activism and public policy:

ADAPT logo     AMERICAN DISABLED FOR ATTENDANT PROGRAMS TODAY (ADAPT)

 

Disability News Service logoDisability News Service

Mission: To meet the media and public's demand for quality news and information.

 

Dan logo - to go where others have gone before    Disability Net: Disabled People's Direct Action Network (DAN) (last accessed 7/17/04)

 The Disability Rights Activist

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Disability Rights Education and Defense Fund, Inc. -  (DREDF) Founded in 1979 by people with disabilities and parents of children with disabilities.  A national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities.

Disabilities/Industrial Complex  - DICOMP (Disabilities/Industrial Complex) is an organization without formal organization. Its membership consists of people with disabilities, companies and individuals who provide products/services, and advocates for accessibility.

DRA LOGO- dignitity, equalitity, opportunityDisability Rights Advocates a national and international non-profit organization dedicated to protecting and advancing the civil rights of people with disabilities. Operated by and established for people with disabilities. DRA pursues its mission through research, education, and legal advocacy. (last accessed 7/17/04)   

Electric Edge logoElectric Edge - Ragged Edge magazine is successor to the award-winning periodical, The Disability Rag. Includes: today's writing about society's "ragged edge" issues: medical rationing, genetic discrimination, assisted suicide, long-term care, attendant services. We cover the disability experience in America -- what it means to be a crip living at the start of the 21st century.  (last accessed 7/17/04)

Empowerment Zone- helping individuals and communities achieve self actualization and full citizenship. (last accessed 7/17/04)

 FreeAdvice.com ® provides general legal information to help people understand their legal rights in 100 legal topics.(added 8/31/00)

 Justice for All logoJustice For All  (JFA) and the JFA E-mail Network were formed to defend and advance disability rights and programs. JFA works with national and state organizations of people with disabilities to get the word from Washington D.C. to the grassroots. (last accessed 7/17/04) 

logo - the resistance!Not Dead Yet - Since 1983, many people with disabilities have opposed the assisted suicide and euthanasia movement. Though often described as compassionate, legalized medical killing is really about a deadly double standard for people with severe disabilities, including both conditions that are labeled terminal and those that are not. (last accessed 7/17/04)

NCIL logo - not just responding to change, but leading it   National Council on Independent Living (NCIL) is a membership organization that advances the independent living philosophy and advocates for the human rights of, and services for, people with disabilities to further their full integration and participation in society.

 logo- statue of liberty behind barsNursing Homes – (last accessed 7/17/04) focuses on keeping people out of nursing home and living in the community with the resources they need.

Project Vote Smart a national library of factual information on over 13,000 elected offices and candidates for public office --- President, Governors, Congress and State Legislatures, covering  backgrounds, issue positions, voting records, campaign finances and the performance evaluations.

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California Organizations

CDA LOGOCalifornia Disability Alliance (CDA) -- Advocates for Health works to promote better health care through legislation, by opposing institutionalized care where health care can be provided within the community, and by advocating and alerting the community about changes in health regulations which impact the lives of persons with disabilities. CDA continues to oppose the legalization of assisted suicide and works to improve end-of-life care.

CA Foundation logoCalifornia Foundation for Independent Living Centers (CFILC)

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Health Policy

Center for Studying Health System Change (HSC) informs health care decision makers about changes in the health care system at both the local and national levels and the effects of such changes on people.

logoHSC is a nonpartisan policy research organization located in Washington, D.C. HSC designs and conducts studies focused on the U.S. health care system to inform the thinking and decisions of policy makers in government and private industry. In addition to this applied use, HSC studies contribute more broadly to the body of health care policy research that enables decision makers to understand change and the national and local market forces driving that change.

HSC receives its funding principally from The Robert Wood Johnson Foundation and is affiliated with Mathematica Policy Research, Inc.

Families USA logoFamilies USA - The Voice of Health Care Consumers

(last accessed 7/17/04)  A national nonprofit organization, advocates high-quality, affordable health and long term care. Families USA works at the national, state, and grassroots levels with organizations and individuals to help them participate constructively in shaping health care policies in the public and private sectors. We issue reports and analyses, and work extensively through a variety of media, to educate the public, opinion leaders, and policy makers about problems consumers experience in the health care marketplace and what should be done to solve them.

logo - the resistance!Not Dead Yet Since 1983, many people with disabilities have opposed the assisted suicide and euthanasia movement. Though often described as compassionate, legalized medical killing is really about a deadly double standard for people with severe disabilities, including both conditions that are labeled terminal and those that are not. (last accessed 7/17/04)

 
Robert Wood Johnson Foundation logoTHE ROBERT WOOD JOHNSON FOUNDATION  - nation's largest philanthropy devoted to health and health care. (last accessed 7/17/04)

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United States Government

Legislative Branch

Executive Branch

Judicial Branch

State/Local Governments

Government Services  - (last accessed 7/17/04) portal that links to federal, state, and local government services.

United States House of Representatives:

image of Thomas JeffersonThomas Legislative Information

Thomas (is a service of the U.S. Congress through its Library. Its resources are huge and include: THOMAS currently offers the following databases:

House Floor This Week | House Floor Now |Senate Schedule:  Majority   Minority

Quick Links: House | House Clerk | House Directory | Senate | Senate Directory | GPO

LEGISLATION

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California Government

California Legislative Information on the Internet - A Guide Prepared by The Legislative Counsel, State of California, 10/99. (added -12/17/00)

Guide for Accessing California Legislative Information on the Internet - (added 12/28/00)

Register to vote online - (added 10/7/00)

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© 1997-2004 June Isaacson Kailes, Disability Policy Consultant, All Rights Reserved.
 Created 10/28/97  |  Updated  7/26/04   |  Accessed #